My daughter was diagnosed on March 21st with Epilepsy. We go for our first MRI this friday and her eeg is next Thursday. She has had 7 grand mal seizures. All but one was during the day. The other was 3:45am. Friday she had 3, which were grand mals. The first one was around 2. She went with her sunday school class to a place in town where kids jump on indoor blow up houses. When I got to her she was awake and alert. Usually she falls into a deep sleep after her seizures. She went to sleep on the way home and when we got home she was asleep on the couch and had another one that lasted about a minute and a half. Went back to sleep and woke up 20 minutes later with uncontrollable crying and frustration. She then went back to sleep and 15 min later had her 3rd seizure. We then took her to the ER as she has never had multiple seizures in a day. On the way she just laid in her daddy's lap in a dazed stare and would not respond or look at him. It scared me sooooo bad. We got her to the ER and she remained in that same state for about 15 more min and then started coming to and throwing up. Her neuro just upped her keppra(generic) 100mg to 2.5 tsp 2x a day. She was taking 100mg 1.5 2x a day. This will be the 3rd time we have upped her dose. She is 4 and weighs 37pds. I'm so ready to talk to her Dr.....we don't see him until the 31st. I have had her on a better sleep schedule and have done her medicine on time. She was seizure free this past time for 28 days. She was having them 1-2 weeks. I really thought I had found her triggers and she was going to have control until this happened. The 3 in a day really scared me. I wander how much more her dose can be increased or if this medicine is even really helping. She also has myoclonic jerks some nights and are these normal or could it be seizure activity? I'm scared she's not resting good and it's causing her to still be sleep deprived.
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