3 specialists, 3 different opinions?

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nmgma00

nmgma00

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My daughter has seen her endocrinologist and her psychiatrist and will see her neurologist for the first time on Monday. The first two have differing opinions on what is all happening with my daughter. Is it ADHD, is it epilepsy? Is the OCD related to the epilepsy? Are the hormones she is on causing havoc? Why aren't they treating her thyroid problem? Good grief. I'm almost afraid to hear what the actual neurologist has to say lol Our psychiatrist (whom we love dearly and is one of THE smartest women I've ever met) said my daughter is a "very interesting situation" haha...ahhhh

bring on the rubber room, im making a reservation :pop:
 
yup, all of my docs see something diff, but it is what they were trained to see.
and the fact i am a former athlete doesnt help.

the favorite was the doc who told me, i just need to find jesus and I will get better.
 
Lets hope the neurologist makes things clearer, rather than further muddying the view. Has your daughter had an EEG done?
 
So at least you know that much. To be fair to the docs, it IS tough to untangle all the different threads: Epilepsy can affect hormones, hormones can affect epilepsy, and both can play a role in attention and cognitive issues.

There is definitely an ADHD/Epilepsy connection -- ADHD is more common in kids with epilepsy than in the population at large, and it tends to be more common for people having partial seizures as opposed to generalized seizures -- but it's not that well understood.
 
I have done so much reading, my brain is on over load. It doesn't really bother me for her to be medicated for these things, but my ex-husband and his family think that just because she was diagnosed with epilepsy that all of her other meds for ADHD and OCD are not necessary and obsolete and want me to rip her off everything. Hmmm I'm pretty sure they don't have to live with her and I don't think it's fair to her.
 
I feel for you and your daughter. I have a son (age 18 ) who was recently diagnosed with both OCD and temporal lobe epilepsy. Here are some articles demonstrating a link between the two conditions:

http://ocd.about.com/od/otheranxietydisorders/a/Ocd-And-Epilepsy.htm

http://neuro.psychiatryonline.org/article.aspx?articleID=103357

The good news (according to our neurologist) is that people with both conditions tend to respond better to medication, whereas people with "just" OCD often do not respond as well. The idea is that once the seizures are controlled, then the OCD will taper down as well.

Nevertheless, it is a long, hard path. My son's OCD was pretty bad before treatment but has improved considerably. He continues to have seizures every day (nocturnal only), and this is something we are working on now. I am hopeful but sad because he is in his last year of high school and will not be able to graduate this year.

How old is your daughter? Has anything helped for the OCD? I am always looking for ways to help my son. It is so hard to reason with someone with this condition.
 
My daughter is 12 and she is taking Luvox, or fluvoxamine, for the OCD. The confusion is that the Turner Syndrome she has can mimic the behaviors and symptoms of all of these mental health issues, along with numerous physical/internal impairments/conditions. So there is no clear cut way to know which is which. The week before she had her first recognizable seizure, she had a very rough week with intrusive thoughts. The day she had her seizure, she woke up and said she felt great--euphoric you might say. Her meds have not been increased as we are still waiting to speak with the neurologist. Does your son have repetitive behaviors or intrusive thoughts or both? Just wondering, what a crappy condition to have :-(
 
nmgma00 said:
Yes, she had an EEG done and it showed FLE.
Click to expand...

ok google tried to correct me to say that she has "flea eggs" and not "FLE EEG"
am I a total failure for not knowing/remembering what FLE is?
ok wth is fle?
 
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