9 days no seizures, I feel human again!

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Eli

Eli

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I've been journaling my seizures (and everything else) for 82 weeks now...tracking to date I average 7.8 seizures a week.

Drumroll please.....for the first time in over 82 weeks I've just gone 9 days without a single seizure!!!!!! :woot::woot:

1) I removed something from my life that I didn't realize was as much of a trigger as it apparently was.

2) I have been reading up on food sensitivities and removed 99% of the wheat/gluten from my diet.

I had removed all the standards - msg, aspartame, caffeine, processed foods long ago. So I have been shocked, impressed, giddy happy with the past 9 days, this has never happened before!!!!

I trust they'll hit again, but for the time being I am enjoying feeling great!

I'll keep you updated.
 
That is awesome! Feeling your brain re-wire is a really unreal experience to say the least. I did the same thing. Though I have yet to remove all gluten from my diet.

They say the ketogenic diet or however it is spelled is the number 1 approach for epilepsy. Has tons of success.
 
MuayThaiFighter said:
That is awesome! Feeling your brain re-wire is a really unreal experience to say the least. I did the same thing. Though I have yet to remove all gluten from my diet.

They say the ketogenic diet or however it is spelled is the number 1 approach for epilepsy. Has tons of success.
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Muay it was amazing to me to realize how much bread I ate. Because I always felt like crap it was easy to make toast, or slap some cheese or turkey on some bread. So many others talk about how good you feel by removing these items from your diet, but its easy to disregard their advice cause surely diet is too easy of an answer.

Thank you everyone for the positive comments!!

As a side note, the miserable constipation I lived with is gone and hormonally I should have been seizing like crazy during the first phase of those days.
 
That is great news! I am glad that you were able to discover triggers. Like you said, you may get them again, but now that you know you can go this long in between, it will be easier to deal with. All the best!
 
Hooray! That's terrific! ANd I'm glad you feel great. Good luck, I hope this keeps up.
 
Amazing! How are you going to celebrate? No cake of course...but you have to mark this occasion! High fives all round!
 
LJ-Bain said:
Amazing! How are you going to celebrate? No cake of course...but you have to mark this occasion! High fives all round!
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I've been getting a bunch of projects and stuff done around the house. And I've been sleeping wonderful at night!

Thanks for all the encouragement, I appreciate it. :)
 
Tomorrow will mark 2 weeks. I had a few nightmares but they weren't as bad as they normally are.

I did do something silly tho, but to some extent I am glad I did because it proves my theory. I had a drs appt and errands on Wed and while waiting for my ride to finish up I could smell subway and thought, hey I'm starving why not, surely it won't kill me. I had part of it that afternoon and the rest later; the dog got part of it, of course.

From yesterday to today my stomach and intestines felt like they were being ripped apart and the nausea was intense. Sorry if tmi.

I learned a valuable lesson, back to my reduced bread intake.

Ohhhh, I forgot. For a long while I've had a rash along my jawbone. I thought it was because of the keppra, as did the dr. I had been eating a bakery made banana muffin for breakfast for close to a year now. (Banana muffin sounded healthy you know!) As soon as I stopped eating them along with the reduced wheat/bread the rash disappeared!!!!!

:banana:
 
Fantastic!

Obviously not the intestine ripping, but the 2 weeks thing! Getting rid of the rash is pretty slick as well.

How are you coping with the change in diet?
 
It was going really well. Feeling better, sleeping better, less seizure activity and not constipated!!!

I went to the drs and walmart that day without eating before I left the house (I desperately needed to go groc shopping as I was out of fresh fruit and veg). So I stocked up at walmart and was sitting at the subway inside walmart waiting for my ride to finish her shopping. I gave into the subway temptation. :oops:

Lol, it would've been smarter to eat the grapes I'd just bought!

The great thing is I made a friend that lives close by, goes to the groc store weekly, will take me with her (we split the cost of gas) and she's pleasant to be around!
 
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Eli,

Congrats on reaching the 2 weeks seizure free mark :woot:.
 
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WOW, thank you for posting your experience. You are an inspiration! Please keep us updated.
 
Eli, that is just fabulous news!

Keep us updated!

Jon's nutritionist has said that removing gluten and/or sugar from the diet can often be the key to seizure control -- she always recommends doing that before starting a Ketogenic diet.

Wonder why neurologists don't recommend that?
 
KarenB said:
Eli, that is just fabulous news!

Keep us updated!

Jon's nutritionist has said that removing gluten and/or sugar from the diet can often be the key to seizure control -- she always recommends doing that before starting a Ketogenic diet.

Wonder why neurologists don't recommend that?
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Just another reason why I love and appreciate cwe so much! The wealth of information, talking to others with real life experiences, sucesses and/or failures with various treatments...we're a living, breathing scientific experiment!

/huggs
 
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