a change of meds

[seizuregirl]

Hi everyone, it's been a been awhile and things have changed.

I've had to switch to a new doctor since the last doctor I had refused to refill my meds when I got down to the last refill allowed, I ended getting an emergency refill but my dr still refused to allow a refill. I ended up getting sick because of not having enough meds in me and had to go to a local hospital after having a bad tonic-clonic in front of family.

I now have a local neurologist, who told me that he had interned with my last neurologist and was shocked that he wouldn't allow the refill! But he ended up changing the meds I was on after finding out that I haven't tried half of the meds that are available.

So far so good with what I'm on now! And I sure hope it stays that way.

 

[Nakamova]

I'm glad you've found what sounds like a helpful, responsive neurologist. Hope the new med does the trick! Keep us posted.

 

[seizuregirl]

What's been great about this new med is that I am now feeling, emotionally, MUCH better! I haven't had the 'Life Sucks.' feeling for 4, 5 days, and my whole family, especially my Twin and my Father, has noticed it, I've been smiling more, talking more and laughing more rather than trying to hide in my room like I had wanted to with the last med combination I was on.

Granted, this new med I'm on isn't used for treating depression too, I just think that being taken off the other med I was on has helped loosen up the hold that depression had on me. (If that makes any sense)

 

[seizuregirl]

Another good thing about this new med is that, and my family agrees, if they do work to lessen the tonic clonic seizures and I don't keep having them left and right like I was before, they agree to go hiking with me on the many, many trails we have in the city!

Which is great since we have at least 9 different trails to go on, many of them are old train lines that used to run in and out of the city 25-100yrs ago and the trails are in the city limits so if something were to happen, we would be by a populated area to get help. And not just for me, but my Twin and Father too, if I can convince him to come with that is!

1 of the trails runs above the city zoo, (your basically able to get free admission to the zoo by walking on it!) it also goes by the top of the street my aunt's house on and ends maybe half a mile away at the top of one of the streets in my old childhood neighborhood and is less than a block away from my sister's house!

There is another trail that is by my house, and another sister's house we live by, and is the most used trail in the city, you can find hikers, joggers, and bicyclers on it all day long. 2 of my sisters' and a brother-in-law are always since it goes through the backyard of my younger sister's house (easy access, no need to drive to the start)!

My sister and brother-in-law will frequently send their 2 older kids to our place along this trail since it gets some exercise in them rather than have them sitting on their bums all day long, or all of them will walk to our place to get some exercise for all of them, their 5-year old too.

 

[seizuregirl]

I'm not suggesting that this new med is going to end my seizures, I don't believe that any drug or drug combo will fully work, or any kind of surgery, whether it's a VNS, (my new dr is very interested in my having this done.) RNS, or any new bit of technology will work either.

But like my new dr has said, I'm basically drug resistant, but I do hope that they will lessen the amount, or perhaps the severity of them so I'm able to do more things outdoors instead of just sitting on my deck or sitting in my yard with supervision and feeling "locked up" like I do now.

 

[gnault]

I would call that neglect if a doctor knows that you need a medication due to seizures and doesn't give you refills. Almost worth a complaint to a local hospital or medical authority. What if something more serious like a secondary injury occurred or long term effects of the Tonic Clonic?