Absence siezures help

[whisper]

Iam wondering if someone can tell me how long a absence seizure last for or about ..My daughter is going into these she just sits and stares no respond from her ..she was staying with me and got up to get my grandson ready for school,i must have fell asleep again ,and about a hour later my grandson came up stairs and i noticed he wasnt ready i said whats mummy doing i went downstairs and she was just sitting staring ..tried talking to her but no reply ..so about 10.30 we took her to docs with a bit of difficulty,her doctor said it might pass .It was 3.00 clock and stil michelle was in this state phoned doc they sent paramedic out on motorbike ,then ambulance ..they were shouting her name to her as there was no response next min she went into a Grand mal i ran down stairs as usal ..iam sorry i find it hard seeing her like this .She took another one in resuss..next day she was confused and was talking nonsense saying there talking about her nurses very paranoid.any how next week she had appointment with neourologist..He said it wasnt absent siezure she was in as it wouldnt last that long at times i think he thinks we are making this all up ..said he doesnt no what she was in ..anyone help me here ..he even had all her medicine mixed up feel he hasnt a clue at times ..thankyou

 

[Rae1889]

my absences last about 5 - 30 seconds. It sounds like she went catatonic. Or in a very prolong non-convulsive status seizure.

 

[Nakamova]

Hi whisper, welcome to CWE!

Absence seizures usually last from a few seconds to about 30 seconds. But it is possible to have hundreds over the course of the day, so perhaps that's what's going on. Either way, she needs a good neurologist to help figure out what's going on. An EEG/MRI/CAT scan might help to show what's going on -- has the neurologist scheduled any tests?

Best,
Nakamova

 

[Rae1889]

http://en.wikipedia.org/wiki/Catalepsy
does this sound similar?

 

[whisper]

Hi whisper, welcome to CWE!

Absence seizures usually last from a few seconds to about 30 seconds. But it is possible to have hundreds over the course of the day, so perhaps that's what's going on. Either way, she needs a good neurologist to help figure out what's going on. An EEG/MRI/CAT scan might help to show what's going on -- has the neurologist scheduled any tests?

Best,
Nakamova

no he hasnt scheduled any test at all..its happened since she got put on lamotrigine..

 

[valeriedl]

I have seizures that will go on for around 30 seconds to 30 minutes. My neuro told us that if I don't start to come out of the seizure in about 15 minutes then I should go to the er.

I had one recently (I think it was a grand mal) and I wasn't out of it in 15 min. My mom called 911 and when the ambulance got there I was just starting to come out of it. I still wasn't completly back into reality for about another 15 min after that.

 

[Endless]

Whisper,

I'm so sorry your daughter is going through this.

A convulsive seizure that lasts more than 30 minutes is called "status epilepticus." If it's a generalized seizure you need to call 9-1-1 if it's over 5 minutes.

There is some evidence that a seizure that lasts over 5 minutes can make permanent changes to your brain. I don't find this useful information, because no one could get to the ER that fast. Some people do have emergency meds - distat- for their small children. (and adults, too)

Here's more information:
http://www.epilepsyfoundation.org/about/types/types/statusepilepticus.cfm
http://en.wikipedia.org/wiki/Status_epilepticus

Whisper, did your daughter have tests in the past, like an EEG, MRI? What did they show?

Do you think it might be time to get a second opinion from another neurologist? Consider finding a seizure specialist - an epi. They know more about seizures and can be more helpful.

 

[whisper]

Hi whisper, welcome to CWE!

Absence seizures usually last from a few seconds to about 30 seconds. But it is possible to have hundreds over the course of the day, so perhaps that's what's going on. Either way, she needs a good neurologist to help figure out what's going on. An EEG/MRI/CAT scan might help to show what's going on -- has the neurologist scheduled any tests?

Best,
Nakamova

Thats what i have been thinking now she may be going into lots through the course of the day ..and then she will go into a full blown seizure when out it two or three maybe she is allways in hosp when she takes a seizure and confused for days ..but every day she is constanlty not her self really sad breaks my heart

 

[Nakamova]

I hope she can see the doctor soon, get some more tests, maybe adjust the medication or dose so she (and you) can get some relief.