Acceptance of A Person Who Has E

[acshuman]

I can only speak about my own experiences.
After my parents died I found out which relatives, of both parents, truly accepted me and didn't throw me 'under the bus' because I had E.
The number of relatives who would even speak to me shrunk down to 2 uncles and their families. Everyone else acted as though I didn't meet their 'standards', and wasn't 'good enough' to waste their time on!
These 2 uncles and their families are the only relatives that are 'alive' as far as I am concerned!
If the others don't want to talk to me, I just say GOOD RIDDANCE!

ACsHuman

 

[Belinda5000]

My family could careless about me actually except for one sister that I can count on and actually always have been able to count on her;my sister Anne will help me when she can but she has a job,husband and a busy life. I will keep in touch with my sister. The rest of my family just ask about my seizures she'll ask how I'm doing . She doesn't use my sz's as an excuse.

 

[Porkette]

Hi AC,
My parents were concerned in the beginning because I was only 10 yrs. old but by the time I was 14 yrs. old I was out the door and sent to a boarding school where my parents didn't have to deal with my epilepsy. My Grandparents cared a lot and so did my aunts and uncles but when it came to my own parents they just complained about the medical costs even though they had health insurance. I also have a brother who hasn't seen me in 30 yrs. I personally think or wonder if my parents brain washed him to stay away from me. What I find strange is my father has cousins that have epilepsy and they will have good relationships and spend time with them but they turned me over to the boarding school when I was 14 yrs. old and let the state care for me. Years later they are mad at me because I made something of myself getting a full time job, being married and having a home. I wonder if they were hoping I would make nothing of my life but I proved them wrong. Here's wishing you well and May God Bless You!

Sue

 

[acshuman]

Acceptance

Sue,
You are speaking of something that I think is a problem for many people!! They think that they are SO smart that they could never deal with something improperly! When they find out that they WERE wrong, they can't deal with it, and deal with the fact that they were wrong by denying that the problem ever existed! This is the ONLY way, in their closed minds, that they can deal with making a mistake that they made!
I experienced this with parents who each had different ways of admitting a mistake! My mother(only biologically) would never accept the fact that she made a huge mistake, but my father, who had been kind of difficult to reach when he was operating our farm, admitted his mistake to me, after the stress of making all of the decisions on our farm(very stressful job)had ended with his retirement. I feel that it takes a hell of a lot MORE strength to admit making a mistake, to the person affected by that mistake, than it takes to deny you ever made that mistake in the first place. IMO

ACsHuman

 

[seagull]

I don't expect any family member deal with it not there problem it mine and apart from my son and daughter the others can take a leap they all a load of grabbing selfish people who I unfortunatly have DNA link with

 

[acshuman]

Uncaring People

Something that many people w/E have to do is watch people who should care about them turn their backs on the person e/E! This is something that I have dealt with and know CAN be dealt with. The person who has E may lose the acceptance of some people who SHOULD be acceptable, but this may actually be a GOOD thing for the person w/E, because they won't have all of that negativity around them any more!:twocents:

 

[Belinda5000]

Sue,
it is important that you accept before anyone will accept you E.That can take a long time for some people.

 

[Porkette]

Hi Belinda,
I've accepted my E and I have tried to teach co workers and students at the school where I work about E. It's my immediate family that won't accept the fact that I have E that's why they have cut themselves off from me. Thanks for your advice and concern I appreciate it a lot. I wish you only the best and May God Bless You!

Sue

 

[seagull]

I have never understood why people accept diabetic but not e I just don't fathom it.I no more tell my family than put hand in fire.They always treated me like sh1t I no give them more ammunition .People accept boink on head strokes and all other head problems but not e...I was reading right up until 60s a marriage could be annulled if e raise its head in early days.
I just wondering is it because many e patients were shoved into mental hospital instead of home or ordinary hospital hense public look at us as if we got mental illness.Do we scare people as we laying on floor unconscious or is it we may have wee problem.Someone enlighten me

 

[Belinda5000]

human,
relatives are the worst at not accepting but if there are those into drugs that is ok and you need to take that into consideration and why should I?
I'll never forget my cousin who was like 40 who told me not to have a seizure around him.
my cousin had watched me grow up from like 8 yrs old and I have always had sz's.
There is no excuse for them to act like idiots they don't when it comes to my asthma.

 

[valeriedl]

I don't know if this deals with the fact that I have epilepsy and seizures but I lost many of my friends because I don't drive.

When I was first diagnosed I had to move back home with my parents and almost all of my friends lived about an hour away then. At first they would call every so often but no one ever bothered to drive to see me so we could go out. They'd always tell me that I could come see them but I just physically couldn't. There's no public transportation where I live. My parents would drive me to their house at times but then they'd stay, usually go out to eat or shopping, while I was there so they could bring me back home. After a while the calls decreased then they just stopped calling in general.

I know that my friends had jobs and younger kids so it wasn't like they could just drop everything and come see me any time they wanted but you think they would have put a little bit more effort into it. At least with the phone calls!

 

[Belinda5000]

When it comes to me and I see my relatives I get there information so I can get in touch and stay in touch with them. I don't have any aunts left or uncles except for one and he's 10 yrs older my husband. He's in Arkansas and that's one state I never care to return to.

 

[seagull]

My sister and her sprogs live up the road about 40second walk never in 10yrs I lived here have I been offered lift they drive pass hoot and I trail back with shopping by cab.
I discovered my sister and mother did mothers Will surprised not.my daughter written out and so was I my sister won't let me see Will but my e and other problems and daughter with e and other brain problems is one the reasons we been written out.So I hope she lives another ten years and every penny go on old girls care.mother already given my sister 2houses..Lot of bitterness in my family

 

[acshuman]

How Weak Are Uncaring People

I found out after my mother(only biologically) died what had happened with my father's will. I had always taken it for granted that she would have everything rewritten to prevent me from inheriting anything. My biggest surprise was when I found out that she had actually considered what my dad had done as unchangeable. When the attorney that handled everything contacted me and asked me to come to his office I figured I was going to be told 'Sorry but she has given everything to other people.'. To my surprise I found out that everything was just as it had been since my dad had the trust written up. There were no changes. That is what really surprised me! It showed me that she respected dad enough to NOT rewrite everything, in the uncaring way, she wanted it.:clap:

ACsHuman