Can you help with advice on sleep/breathing monitors for an epileptic child please?
My 12 month old son has West’s Syndrome. He has different sorts of seizures. One particular type is where he totally freezes and stops breathing. I then need to administer rescue meds quickly as he is turning blue. As a result, he is never left on his own when awake, even in a secure environment such as a playpen.
At night I have been using an AngelCare monitor, which is a standard baby monitor. It has a sensor pad that goes under the mattress and alerts me if he stops breathing. However, the manufacturers advise me its not really suitable after 14 months due to the change in the body’s physiology. He’s a really tall lad and already as big as most 18 month old kids. Therefore, I need to get my hands on a monitor that designed for children/toddlers and not just a SIDS baby monitor.
Can anyone let me know if they have a child who stops breathing and if you have a monitor, what type it is? Additionally, if you are in the UK, can you let me know whether the local health authorities were able to help with funding/rental/loan?
All help will be very much appreciated. In a few weeks he will have to come off his Sabril (Vigabatrin) due to side effects of long term use (he’s been on it for nearly 6 months). His epilepsy is fairly well controlled on this but I expect him to go through a rough patch as we take him off it and try and find something else that will work for him.
Thanks in advance.
My 12 month old son has West’s Syndrome. He has different sorts of seizures. One particular type is where he totally freezes and stops breathing. I then need to administer rescue meds quickly as he is turning blue. As a result, he is never left on his own when awake, even in a secure environment such as a playpen.
At night I have been using an AngelCare monitor, which is a standard baby monitor. It has a sensor pad that goes under the mattress and alerts me if he stops breathing. However, the manufacturers advise me its not really suitable after 14 months due to the change in the body’s physiology. He’s a really tall lad and already as big as most 18 month old kids. Therefore, I need to get my hands on a monitor that designed for children/toddlers and not just a SIDS baby monitor.
Can anyone let me know if they have a child who stops breathing and if you have a monitor, what type it is? Additionally, if you are in the UK, can you let me know whether the local health authorities were able to help with funding/rental/loan?
All help will be very much appreciated. In a few weeks he will have to come off his Sabril (Vigabatrin) due to side effects of long term use (he’s been on it for nearly 6 months). His epilepsy is fairly well controlled on this but I expect him to go through a rough patch as we take him off it and try and find something else that will work for him.
Thanks in advance.