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Yesterday I had lunch with a mother who lost her youngest daughter to SUDEP. Her daughter was 16 when they lost her, but despite the tragic loss, this woman is doing tremendous things to help others. She started a foundation in remembrance of the daughter to raise money for seizure-response dogs and to alert the public about the possibility of SUDEP, although that isn't her main focus. She has big plans for the future, saying this is her way of coping with the loss of her daughter. They recently returned from Pasadena, CA where they participated in the "Real Life Hero! Walk to End Epilepsy 2011" with actor Greg Grunberg. She eventually wants to have him come to Denver to participate in her foundation's activities. I told her I definitely want to be a part of this group. I love the way they're going about it, willing to listen and include everyone in one way or another that has epilepsy or the loved ones. This is something I've been looking for. It seems like the epilepsy foundation here focuses mostly on the newest trends or mainly on children. I need something for folks like me who've tried everything, to no avail, and that is what she wants to include. :clap: They have big dreams.....
http://www.chelseahutchisonfoundation.org/?q=goals
http://www.chelseahutchisonfoundation.org/?q=goals