An update and a thank you

[StaceyCeCe]

Hello everyone,

I don't believe I have posted in awhile. Of course, I could have and just don't remember as I seem to be losing my memory more and more these days. To update: I'm finally having that 48 hour EEG done in January. After my last employer's insurance declined the coverage due to the "not a medical necessity" statement, I'm just going to work out a payment plan with the facility that is conducting it. I'm praying my medical insurance will cover some of it but I've already encountered a few "pre-existing condition" comments so we will see.

I have to say that I am really looking forward to having this procedure done, as odd as that may sound. I just want some answers and I am really hoping something is recorded during the two days of being hooked up. Regretfully, I haven't been keeping detailed notes in my seizure journal like I did when all this began in July. In the last couple of months I have had some good weeks with no "episodes" and then I have some with them happening constantly. Although, if I were to have continued recording them, I would have an accurate timeframe. I can honestly say that I feel as though I have at least 1 per week. They are getting a bit rough for me. I'm grateful that I haven't had any grand mal's but I am starting to lose bladder control. I'm grateful my husband came to my rescue last week when I had an episode at work. I was able to make it to the bathroom before fainting but once I hit the ground ... oy. And lately I have this continuous sulfur/gas smell I can't seem to get rid of. I've asked several people around me if they smell it and I am always disappointed that they don't. Oh, well!

But, I did want to thank absolutely everyone on this website. It truly has been a lifesaver for me. I know how hard it can be to share your experience with total strangers. I truly appreciate being able to log in to this website and know that I am not alone on this bizarre little journey that I embarked upon 5 months ago. Thank you. Thank you. Thank you.

I wish everyone a very Merry Christmas!

God bless,

Stacey :xmas:

 

[Endless]

Stacey,

It's so good to hear from you!

That sulfer smell. How long does it last? Most likely a simple partial seizure. Weird smells are one of the more common types. Drives me nuts, too.

I'm happy you are going to get the EEG. If you think your insurance company isn't treating you properly, you can go to either their appeals department, or your state's insurance comissioner. Lodging a complaint with the insurance comissioner may get results.

I'm thinking about you and sending positive thoughts. Will you let us know how the eeg goes?

 

[Minkels]

Agree with Endless on the insurance issue--definitely appeal it! I successfully appealed mine. It's kind of a pain in the ass to do, but it was better than the payment ($2000) that I would have had to pay out of pocket. I am glad to hear that you are finally going to get some answers, and also glad you have had some good weeks without some incidents. Please keep us updated, and hope you have a great holiday, too!