Andrew's Story-Update-EEG results

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Hi all :hello: So I met with Andrew's Ped today to get the results of his sleep deprived EEG. It seemed like a long two week wait.

Report says:

"Interpretation: The awake and sleep EEG is abnormal. The study shows:

1. Frequent (awake) and abundant (sleep) focal independent epiletogenic potentials over the centrotemporal head regions bliaterally.
2. Normal awake and sleep background.

These findings are indicative of potential for seizures of focal origin and potential secondary bilateral hemispheric involvement as seen in diverse childhood onset focal epilepsies. The electrographic findings are suggestive of Rolandic Epilepsy.

Report: The recordings during wakefulness contains 10 Hz activity over the posterior head regions. Normal amplitude theta activity was present over the central head regions. Low amplitude beta activity was seen over the anterior head regions.

During wakefulness abundant focal spikes and sharp waves were present over the centrotemporal head region.

During spontaneous sleep, V waves, and symmetric spindling activity were present. During sleep there was increased activation of focal bilateral independent centro-temporal spikes/sharp waves.

No electroclinical or electrographic seizures were recorded.

No additional activation occurred with hyperventilation or photic stimulation.

The EKG was unremarkable."


If anyone can help me interpret what this all means, I'd be forever grateful. The Ped diagnosed him with Rolandic Epilepsy today, and I see that it is suggestive in the report, but does the report not also state that he also has a higher chance of seizures while awake too? His bought of SE seizures on Dec 27 started about 10:20am. His recommendation is to start him on valproic acid 150mg 2x/day. Then increase if needed.

My husband contacted a friend of his that's a neurologist and he recommended a Pediatric Epileptologist to us. Turns out he is the same PE that did the EEG report. I requested a referral at the app't today, and a little reluctantly, I got it. I confirmed with the Ped office that it's been sent off and I should hear from the PE's office soon.

So much to take in...kinda overwhelming.

Thanks to all for your kind words of encouragement and advice you've given me so far. You guys have been wonderful. I don't know where I'd be without you all. :hugs:
 

masterjen

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Hi!
Thanks for taking the time to update us all with the test results.
Sorry I can't help with the EEG interpretation but others here may have thoughts. You are doing the right thing by requesting to see the pediatric epileptologist; I hope this appointment proves helpful. I don't know much about rolandic epilepsy, but I have read that kids can outgrow it. You may have seen this in doing your own research, but this is a good overview: http://www.epilepsy.com/learn/types-epilepsy-syndromes/benign-rolandic-epilepsy
Best of luck to you and your son, and I hope you will continue to keep us updated.
 

Nakamova

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but does the report not also state that he also has a higher chance of seizures while awake too?
Spike and wave patterns during the awake portion of the EEG can indicate a tendency to have seizures, but don't necessarily predict that such seizures will occur during daytime. With BRE, seizures usually occur at night, but for some they occur in the daytime too, so there may be no way to know for sure. Hopefully the pediatric neurologist (either the first one or the second one) will clarify this for you.

Make a note of any and all questions you have about the EEG results and ask the pediatric neurologist(s) to respond. It's their job!
 
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Thanks Nakamova! I will definitely ask the Pediatric Epileptologist that question. The only seizures Andrew has had, that we know of, 3 now for sure, but I can think over several more in the past that I "think" were partials, have all happened during the daytime. I realize that I could easily be missing some at night.

When the Ped made the diagnosis of BRE, I said, "Well that means he'll probably outgrow it at some point then right?" His answer was "long pause......In Andrew's case, we'll have to wait and see."

So yes, I'll be good to see the specialist for sure. :)
 
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