another seizure

[seizuregirl]

I guess I had a seizure a short while ago. It seemed like it didn't happen since I didn't loose bladder control. It seems to me like I just blinked.

But I guess I either came out of it when shortly after my father came home or it started when he came inside. He stood there watching me, and when I finally came too, he told me that I had one. Of course, I never believe anyone when they've told me that I've had a seizure. I only believe it when I have a mess to clean up.

I'm happy that I didn't have mess during/after this time! But of course, I hate not being aware of having a seizure. It's just so very frustrating, having seizure's still, and I had taken my evening dose not even an half hr, 45 mins before the seizure.

 

[seizuregirl]

2 of the 3 most frustrating parts of my having epilepsy is not having aura's, and having to rely on someone whose with me at the time to tell me when I've had one.

And it would truly be great if I could find out how long my seizure's last too but since I'm around toddler's M-F while their parents are working, and my Twin sister, who spends most of her day in her room watching tv, and weekends I am again with my Twin who spends most of the day in her room while our Father goes and spends time with my step-mother at a casino to "relax." Or he heads to an Uncles house to work on projects such as plumbing, helping mud & tape a room I can't get any help with timing them.

 

[marika853]

Could you get a friend to spend the day with you? Or a co-worker? Set up a camera?
I feel bad for you because it must be very frustrating not knowing when to expect a seizure. Luckily, I have auras and can get warned about impending situation.
Good Luck!
M

 

[masterjen]

Are you a candidate for a seizure dog? From what I understand some can be very good at warning of an impending seizure.
Or how about a seizure smartwatch - they don't work for everybody but could be worth a try.
As marika mentioned, having someone with you is best but a camera would work too, to record and time the seizures. When your with the toddlers, can a co-worker time the seizures for you?

 

[seizuregirl]

My only co-worker I have with me is my Twin sister, she has cerebral palsy and is mentally a 9-11yr old. She spends most of the day in her room unless I can convince her to leave her room when it's time for me to make a snack or lunch & watch our niece and nephew, and it's VERY difficult to do that. She is a very stubborn gal!
(But then again, so am I! It truly is great being a Twin! And no. That isn't sarcasm LOL, It's fun watching/listening to family members talk to one of us as if were the other, we've had many surprise's ruined over the years because of being identical! And the look on their faces when they realized they've just ruined a surprise will never be forgotten! Even when our sister's just start a conversation with us as if we were the other is great too!)

And I don't have any friends anymore. The last friends I had were either high school friends that have moved away, and co-workers that I had at my last job but have lost touch with since I quit. I have other "friends" too but they are really my sister's friends, and best friends. And they have their families to take care off or now live in other cities.

I'm not sure if I'd be a candidate for a seizure dog. I've thought of it but the dog we have now isn't the best when around other dogs. After a while he gets used to them but it's only if the other dogs only around for a short time here & there.

We've watched our sister's dogs when they've left town for short amounts of time, weekends, 3/4 days, but he got quite antsy, and jealous whenever we showed any attention to the other dogs after a few days. And we wouldn't be able to let him go. He's able to get my Twin to leave her room because she just adores him! She takes care of him by putting him outside when he needs to, makes sure he has food and water, etc.

I've never heard of a seizure smartwatch before! What are they like?

 

[seizuregirl]

I think after we lose our dog, I would probably look into a seizure dog since it's something I've thought about, and have been amazed that some dogs can tell when someone about to have a seizure! I would just hope I can get some support from my family if I have to travel somewhere to sign up, to look at one, or to train with one.

 

[seizuregirl]

A great memory of being a twin, my twin wore glasses when we were young and would take them off again and again throughout the day, and our Mother would find them and put them back on her, but many times she would walk up to me and put them on me! I would take them off and she would immediately put them back on me, telling me, "You need to wear these! They help your eyes!" I would have to tell her I don't wear them! My Mother would then take a good look at me, sigh and say, "You 2 are TOO identical!" and apologize, but it still happened again and again!

 

[valeriedl]

2 of the 3 most frustrating parts of my having epilepsy is not having aura's, and having to rely on someone whose with me at the time to tell me when I've had one.

This sounds like me. I very rarely get an aura/simple partial before a seizure so I generally don't know if I've had one or how long it lasted either unless there is someone there to see it happen. A good bit of times I'll have a migraine after a seizure so if I have a migraine 'out of the blue' I assume I have a seizure.

I'll do things during a seizure too that I don't know I'm doing that may let me know that I've had one. Once I loaded the dishwasher in a very interesting way. That's how I knew I'd had a seizure.

And I don't have any friends anymore. The last friends I had were either high school friends that have moved away, and co-workers that I had at my last job but have lost touch with since I quit. I have other "friends" too but they are really my sister's friends, and best friends. And they have their families to take care off or now live in other cities.

This also sounds like me too! My friends have families and moved at least an hour away. It's very hard to get together since I can't drive. They have jobs and young kids so they can't just hop in the car when ever they want to come see me. We do talk on the phone a good bit but it's usually just texting back and forth.

The people I used to work with just sort of disappeared too. I don't know what happened with them.

 

[seizuregirl]

I'm sure I could find out what happened to my friends and old co-workers by going on facebook again, but I have no reason to go on it. I have nothing interesting in my life to post other than when i have a seizure, (i'm sure they all want to know, along with the aftermath of having one) watching kids again or going to the grocery store and walmart on the weekends. Pretty damn boring i'd say. And anything interesting that may have happened throughout the day I will have forgotten when I have the time to log on and post it.

And posting and reading posts on fb isn't the same as actually spending time with them, or talking to them face to face.

 

[valeriedl]

I can't stand Face Book in general! The stuff some people put on there is pretty stupid. I really don't care if you went to Taco Bell for lunch and they gave you the wrong taco....

Basically the only reason I'm on there is to keep in touch with my family. Anytime there is any sort of family get together there is a message sent out to all of us to let us know. It's easier than making phone calls or sending a letter in the mail.

 

[MAB]

There are a coupe good groups about epilepsy on FB. I even met someone that lives only a few miles from me. I will admit I have learned more from this site than ant others. I learned more about PSs than I cold have ever learned any where else.

 

[seizuregirl]

My oldest sister is the kind that has to let everyone know what she's just done, whether it's true or not. And she also will try to escalate what's going on to new heights for more sympathy or just more attention. She lives off the attention. She's unfortunately been that way her whole life.

 

[seizuregirl]

I'm on a mailing list for a local epilepsy support group. They're also on facebook too, but they tend to focus more on childrens epilepsy, but will speak of all ages and types of epilepsy here and there. I get daily emails from them too with notices about meetings, or events going on but to get to the meetings I have to find a family member, sister's, father, with the time to drive me when they're dealing with their kids' events, or with my father, who's not quite an alcoholic, but pretty dang close, is practically impossible.

 

[valeriedl]

My oldest sister is the kind that has to let everyone know what she's just done, whether it's true or not. And she also will try to escalate what's going on to new heights for more sympathy or just more attention. She lives off the attention. She's unfortunately been that way her whole life.

I don't mind when people post pictures of their kids on there, it's nice to see them and what they are doing. But when they post 20 pictures in one day I think that's a little over the top!

My brother in law lost his wife about 4 months ago and he posts on there at least once a day about how much he misses her, things he found that remind him of her, how things aren't smelling like her any more and so on. Ok he's upset I about loosing her, which I can understand, but he needs to start moving on. He should find some sort of support group where people actually meet and talk to them about it so he can get some actual help, not just type it out on the internet. Sorry if that sounded very rude.

 

[Autumn Breeze]

Its only been 4 months. My aunt lost my uncle 2 years ago. She still posts about him (almost) daily.

Give it time. Block him if you need to.