any one from the UK ??? near northamptonshire ???

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Ohhhh yeah, she claims she was born in good hope hospital.
But on birth cert it says Birmingham.

Sister outlaw still lives there

Yeah, Good Hope is in Sutton Coldfield which is a 'burb of Birmingham, whereas Tamworth, which has a Birmingham postcode, i'll grant you, is definitely its "own" town.

(Good Hope is my nearest hosp - we call it No Hope, lol)
 
Ask to be referred to Leicester hospital they done all my follow ups last year.
Better than when we lived in MK.

The availability of my meds was better in MK though.

Ive just been discharged from leicester royal infirmary and my follow ups are with Dr critchly. Id been in for the last 3 1/2 weeks but they are really good at leicester
 
Tamworth castle was pretty cool I thought.


:roflmao::roflmao: naaaaaaaa it's been on "Most Haunted" that's about as cool as its got.

But hey I'm bias coz I was born in Knightsbridge and grew up in London.


Tamorth is ok, but they all talk funny. Pmsl.
We go up to visit the sisinlaw every now and then.
 
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Ive just been discharged from leicester royal infirmary and my follow ups are with Dr critchly. Id been in for the last 3 1/2 weeks but they are really good at leicester

I was discharged a few weeks back not knowing any more than what I already knew, ie they don't know what's caused it, where in my head it is, and what's the best meds for me.
 
I was discharged a few weeks back not knowing any more than what I already knew, ie they don't know what's caused it, where in my head it is, and what's the best meds for me.

So you from round here then ?

They started me on keppra and taking me of my epilim in April ...were you on ward 24 ? .... The food was Awfull
 
Not far from Market Harborough,
Nope didn't stay in as my pattern is once very two/ three years then it could be. Couple of TC's.
I started with epilum, or as I know it sodium valproate but from 19 years old I self medicated, ie taking it hen i could be bothered and still my pattern was the same.
Skip a few years and second wife blah blah blah, new nurse said try this wonder drug called Keppra it should eradicate the E.
So unlike me I have taken it religiously and my pattern has been a lil worse not better.
So I have been misadvised re the drug and I demand answers from the doctors, but this is unknown territory for them, they are used to people having a trauma then getting fits.
It bugs me and I push for answers.
 
I don't think I'm struggling with the NHS as much as everyone else, but around 2005 or 2006, I had to take a blood test for something which I can't remember. I'm telling you this because the General Hospital in our borough lost the blood results, then lost it AGAIN, THEN 3 TIMES AFTER THAT!! I had to take the test 4 more times! That shows the "excellent performance" of that hospital!! The repeated loss of the blood test results frustrated me and I signed up to another hospital which is more distant, but is WAY better than the General Hospital. Sometimes I think they lost the blood on purpose because they may have had a desperate shortage...
 
Hi there

I was only just recently diagnosed with TLE. My experiences with the NHS so far is mixed. I saw 2 GP's (in London) who believed the description of what was happening to me sounded like stress and they almost laughed when I said they sounded like Ccomplex partial seizures.

I requested to see another GP who then referred me onto a neurologist and he diagnosed me with having TLE within a week (based on MRI / EEG).

Luckily I have private medical. This really helps as when you tell the GP that you have private medical they nearly always just refer you on to see someone even if they don't think you have the condition in question. Also you get to see the neurologist (or whoever you are seeing very quickly).

I think GP's / the NHS do need to be more clued up on epilpsy symptoms and know when to refer somone to a neurologist.

S
 
Had my first appt with a specialist epilepsy nurse.

Seriously I love her, she is good. I wann make babies with (cept we are both married and I am on a LARC).

She is awesome.

Does anyone get I really LIKE my specialist epilepsy nurse!

Q
 
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