Anyone ever say something they didn't mean during a seizure?

[Crystalblue]

I had a couple phone conversations with my sister yesterday that I thought went fine. But then she wouldn't speak to me all day, then ended up saying "you said some really mean things to me yesterday ..... She then proceeded to get very upset and start berating me! I swear I have no idea what she's talking about. I've just been diagnosed, not even on meds yet, and I'm not sure what kind of seizures I even have-absence seizures, complex partial? Are there any types where you could have whole conversations and not remember? I'm stumped here.

 

[Endless]

Oh, Crystal. I'm so sorry that happened to you and your sister. And yes, there are complex partial seizures where you can say pretty much anything. It's a type of Temporal Lobe Epilepsy. My epi said when there is *seemingly* logical speech that it's probably coming from a seizure in the right temporal lobe.

The really stinky part of it is that you are unconcious, on autopilot, not able to direct or control your words or remember them afterwards. But to the person on the other end it sounds like a logical sentence or string of sentences, that may or may not make perfect sense. But it may also be highly inappropriate.

If you are there with the other person they may see you sit or stand, eyes open, looking perfectly awake even though you aren't. Sometimes it's hard for them to wrap their head around the fact you are having a seizure - the lights are on but nobody's home. Sometimes you can remember nothing about it, sometimes there is a faint memory, like it was a dream.

I really don't want to repeat what I've said during a seizure. But there have been a few doozies. Same with my father. He's gone now but I've talked with family members, and it seems that he had seizures too. It's sad he had all this stuff going on but was undiagnosed during his lifetime (complex and simple partials, speech, Jamais vu, etc.) My family is all taking a deep breath, because this explains a LOT about what he was going through and his (and my family's) experiences with him. And now here I am, too.

I've warned my family and friends that the day may come when I have this type of seizure with them again. What I worry about is work - I've got to be reasonably sure that the complex partials are under control before I go back, becasue if I have one there it there it would not be good.

Feel free to print out this posting and show your sister, or give her the link and have her read it. I'm sure more people will chime in, too. I"m finding here in the forum, whatever kind of seizure I have, I'm in good company with a big crowd of people just like me (and you!).

 

[occb]

Yeah, it's not uncommon to do stuff like that Crystalblue. Lately my partner has taken to yelling curse words during seizures, but he usually doesn't remember it later (what fun at 3am!). We've also had heated conversations which he later forgets.

I think that would be considered a complex partial seizure, since it affects your memory.

 

[poptart]

Yes, I've had that experience. I really don't like the times I can remember flashes of the seizure so I try not to recall them

 

[Stinkpot]

You're not alone. Infact, saying things without thinking is a common aftermath.

I don't say anything during the convulsion, but during the posticle period I do.

I usually scream and cry(really bad, like it's the end of the world) and constantly ask, "did I have a seizure?!" when my parents/witnesses already told me I did.
I also ask for my pets and my sister for some reason.

But I have said some random stuff during the psychotic posticle.

I once thought my house was on fire. My parents weren't home that day, my neighbor called 911, she really beleived what I said! Soon, fire trucks were at my house, my posticle moment was over and I feel really bad for scaring her.

I also had an incident when I asked "did I have sex with my sister?" Even though I was talking about my gross ex boyfriend. Good thing my sis wasn't there - how embarrassed she would be - both of us!

 

[Solicitous]

Oh yes.
Did i ever say something nasty.

A lot of times after i have a seizure, I get sever rectal pains for up to 15 minutes.

One night after a seizure, I was rocking back and forth with a heating pad on my "......" I was suffering so bad.

My wife didn't know what to do, but we thought it was kind of humorous.

I told my wife: "You don't know how much pain I am really in." Then I said that having a seizure is literally a pain in the a..

Then I told her " If you look up on the net about a pain in the a.. (bum) it will
mention your name.

The next morning I apologized and we both had a good laugh over it.

Thank God my wife understands.:roflmao:

Take care.
Norm Beam

 

[Ruth]

Hi CrytalBlue and Poptart, welcome to CWE. I am sorry I did not welcome you before. I will give you a warm welcome now. This wonderful forum was made by Bernard out of love for his wife Stacy. This love permeates throughout the whole forum.

Back to the topic: One time my husband told me that I called my doctor about 50 times in one day. I have no memory of it.

I have yelled at people on the phone. The part that I do not like is that I remember some of those times. My friends did not understand that it was my seizures. My husband told me that I had a seizure before that. I am glad that my husband and son understand.

What relaxes me is going to the Social Group, The Creative Writing Page. You can just comment on a poem or write what you feel.

 

[valeriedl]

Once when I had one my husband was with me making sure I was ok until I came out of it. At first I didn't know who he was during the sez, and then I started to call him one of my ex-boyfriends. He kept telling me who he was but I didn't believe him.

I didn't know what I had done until he'd told me after I came out. Luckily he thought it was funny so we both got a good laugh about it, even to this day!

Let people know you're not the only one that says thing that they may regret saying.

 

[drarvindr]

have sworn at my sister ( and we're talking REAL BAD here). wouldn't speak to me for days and i didnt even remember what happened. She was waking me up one morning. I don't sleep-talk so i don't think i did but when i got to breakfast my parents were furious and thought i was messing with them when i said i didn't remember anything

 

[Ruth]

I have said a lot of things I did not mean during seizures. I have lost some friends, never to get them back again.

 

[KelVarQ]

I called my college professor one day for something and seized in the midst of our conversation. I was on the phone with him and next thing I know I was no longer on the phone and had no clue what happened nor did I have a clue of what he said in regards to the question I had called him for. So I called him back and his response was, "What the hell is wrong with you? Are you on drugs?" I politely answered, "Yes, I'm on the drug Dilantin which is an anti-seizure drug and apparently it doesn't always control the seizures." Needless to say he was shocked and proceeded to tread lightly and answered my questions. Never knew what I said for his harsh response.

 

[gigi]

sharp tongue

I have said and thought lots of things I should not have. I attibute them to my seizure brain. My poor husband is the brunt of my weird brain, for that he deserves praise for his patience and understanding. I am full of remorse after spouting off. I try to curtail my evil tongue, but on occasion it will get the best of me. I have T/C's, so crying is what I do mostly when coming out of them, as my husband announces to me; you have had a seizure! Well, duh! Oh, our dog howls to add to the mix. Three ring circus, is how I would describe it!:loco: