Anyone had seizures just after birth but not before or since

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

rebcats

New
Messages
1
Reaction score
0
Points
0
Hi,

I am new here so hope this is the right place to ask. My son was born in 2005. When he was about 3 months old, I had 2 seizures, one was a serious grand mal seizure which lasted 20 minutes and I went in and out of the seizure for about an hour in total. Then about 2 weeks later, I had a second grand mal seizure in my sleep.

Prior to this, I have never had seizures or been epileptic and I have not had any seizures since the 2 above. I take lamotrigine, 150mg a day but i honestly think that if I stopped taking it I wouldn't have seizures; I mainly carry on taking it because stopping would mean giving up driving which is a major problem as we live in a village.

I had EEGs, brain scans etc and they all came back completely normal so the consultant was quite baffled as to what had caused the seizures. I have my own theory... they both timed with the first period after my pregnancy, the first one around the time of ovulation and the second just before my period. I know my hormones were very high during pregnancy (above average) and I believe that as they dropped from such a high level it triggered a pattern of seizures which would time with catamenial epilepsy type seizures. My consultant didn't dismiss this, he said it was a very interesting theory but difficult to prove with hindsight.

Anyway, I am now at a point where I would like to have another child but I am very frightened of doing so, given the seizures I had. As i understand it, I could have had brain damage from the seizures I had as they were bad grand mal ones but I luckily didn't. My son has ADHD and autism and is very hard work so that also means that i worry more about complications from seizures as I feel I have a huge responsibility to him, more so given his care needs.

I would like to hear from anyone else who had seizures just in isolation around the time of childbirth and how it affected you in subsequent pregnancies?
 
Back
Top Bottom