AlisonBP
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i believe i have multiple seizure types. do other people here have similar experiences? my nuerologist has never told me any classification or diagnosis. after my eeg and mri he just gave me medication and then dischaged me. according to the hospital thats the way it works in this area.
i nearly always get an aura first. then sometimes i will keep full consciousness and can just about hold a conversation while my legs are shaking and my body is starting to stiffen. usually after those i will have one that i partially lose consciousness during. people talking to me will kind of drift in and out and i will be unaware of surroundings. i cant speak or open my eyes and have severe shaking and full body spasms. most of the time i get those ones without the full conscious part.
sometimes my arm will just shake up into the air for no apparent reason or i will lose all perception of time and forget wha a conversation is about halfway through.
sometimes i feel like a fraud or like i'm just crazy. i grew up with the impression that seizures have you on the floor, unconsious and unaware of anything thats happened. all learnt from tv of course. i've even had a neighbour refer to me having 'fake epilepsy' after witnessing me talking and laughing with my friend while my legs shook uncontrollably. it was hard to talk as my stomach started to spasm too but my friend knows i'm usually aware to some degree at least at some point and knows that it scares me so he will make jokes or sing songs that he know will annoy me (usually favourite things from the sound of music and he will deliberately get the words wrong) or ask me completely inappropriate questions to try and give me something to focus on other than fear. when people see the way we deal with the situation they seem to think it means its not really that bad or that i'm just doing it for attention
i nearly always get an aura first. then sometimes i will keep full consciousness and can just about hold a conversation while my legs are shaking and my body is starting to stiffen. usually after those i will have one that i partially lose consciousness during. people talking to me will kind of drift in and out and i will be unaware of surroundings. i cant speak or open my eyes and have severe shaking and full body spasms. most of the time i get those ones without the full conscious part.
sometimes my arm will just shake up into the air for no apparent reason or i will lose all perception of time and forget wha a conversation is about halfway through.
sometimes i feel like a fraud or like i'm just crazy. i grew up with the impression that seizures have you on the floor, unconsious and unaware of anything thats happened. all learnt from tv of course. i've even had a neighbour refer to me having 'fake epilepsy' after witnessing me talking and laughing with my friend while my legs shook uncontrollably. it was hard to talk as my stomach started to spasm too but my friend knows i'm usually aware to some degree at least at some point and knows that it scares me so he will make jokes or sing songs that he know will annoy me (usually favourite things from the sound of music and he will deliberately get the words wrong) or ask me completely inappropriate questions to try and give me something to focus on other than fear. when people see the way we deal with the situation they seem to think it means its not really that bad or that i'm just doing it for attention