ADDENDUM: We'd mentioned to the Doctor yesterday that I'd sought advice on a Forum regarding the Aptiom and what I was told. Had her put me on the phone.
He asked me what I had discussed, what I was told, and he became **extremely** angry. He scolded me QUITE thoroughly, telling me NEVER to do that again, and that if I DID that again that I'd be unceremoniously told to seek another team.
Gave me the speech about how we are all different, he told me that nobody else knows my record and he made certain that nobody else knows what else I'm taking, he told me that *nobody* else knows how what I'm taking affects me, on and on. It actually quite shocked me; I'd never known him to be angry with me.
I had to promise him that I'd never discuss my Rx's with anyone on a Forum EVER again, and that took some doing believe me.
Now when I go in for my regular CT to see how big the holes in my brain are becoming, I had to agree to a blood test to assure him that I'm not smoking dope or taking anything else that's illegal or "alternative" (which translates as illegal most of the time in Texas) nor anything else that goes against what he has Rx'd for my treatment.
I told him no problem THERE, do the hair test instead; I haven't been able to get to a barber in over four years so he can see very plainly that I've been clean other than for what I've been prescribed, for at least that long. I don't even DRINK BOOZE. Haven't since 2002. So I am reasonably confident that I calmed him down, difficult to tell when all one has are the words on the screen of a captioned phone to go by. He seriously scared me. I NEED THIS TEAM.
He told me (once he'd seemed to have calmed down) that all that asking people who aren't MD's is going to do, is scare me into thinking that things are going to happen to me that probably are NOT going to happen to me, and that I NEED TO TRUST MY NEURO TEAM OR BASICALLY GET THE HELL OUT AND FIND ANOTHER OFFICE SOMEPLACE THAT WILL ACCEPT ME.
It took us the better part of four years, I think, once I was FINALLY diagnosed with the bacterium and it was treated, to find someone who would risk their licenses to treat a dying man. I'm not going to risk losing that. I can NOT risk that.
So, this whole thread I started regarding the Aptiom was a HUGE mistake on my part. I like you guys, A LOT, but I can't discuss my Rx's with you.
I just can't.
I hope that you understand that I wish that I'd never brought it up to begin with.