Hi, I'm new, this is my first post in these Forums.
I have read some other posts which make my symptoms seem very insignificant so I guess I must be thankful that I don't have it worse than I do.
I have been suffering from suspected simple partial seizures for at least 10 years. The symptoms are always similar, although more recently there has been a slight change.
I'm sure everyone's familiar with the feeling you get when you wake up from a dream. For a few moments after waking, we feel we can remember the dream, but this memory rapidly fades away. Even whilst desperately trying to remember aspects of the dream, we feel the memory just melting away, and despite our best efforts, it's gone in just a minute or two.
In my 'attacks', I get a feeling a bit similar to this. It's as if a sudden strange thought enters my head for no reason. It seems that a memory has just surfaced, a recent memory which had been forgotten. It feels a little like deja-vu. My usual reaction (I can't help it) is to try and remember more, but it just melts away, like the dream does after waking. I can't describe the memory, because it's different each time and never makes any sense. It is disturbing to suddenly have a thought pop up in your head which does not make any sense.
At the same time, I feel distant, disconnected from the world. I am still awake and able to respond, though might seem distracted. I still know where I am, but my surroundings seem unfamiliar. At this point a feel a pressure in my head. This lasts for a few seconds.
Immediately following this, I start to feel very warm indeed. If I'm in bed, I shake off the covers to cool down. This lasts for a few minutes.
The warm feeling is a relatively new symptom. I used to get a aching in my left arm instead, but I don't really get that any more.
The strength of the attack varies from very strong, where I can feel what is almost like an electric shock in my head, right down to the very weak, where I'm not really sure if it even happened at all.
Also, they come in clusters (this is a recent change) - they used to come about once every week or 2, but now I can go for several weeks feeling fine, and then have a big attack followed by dozens of smaller ones over a 3 or 4 day period, before fading away again. During this time, everything just seems a bit off, as if familiar places are slightly sinister and creepy, and I have a vague unease which I can't really describe, and I can't concentrate. This subsides over a day or 2 after the attacks die down.
I've had things like EEG, MRI scan, but everything's come up clean so far. I appear to be a bit of a mystery.
I have read some other posts which make my symptoms seem very insignificant so I guess I must be thankful that I don't have it worse than I do.
I have been suffering from suspected simple partial seizures for at least 10 years. The symptoms are always similar, although more recently there has been a slight change.
I'm sure everyone's familiar with the feeling you get when you wake up from a dream. For a few moments after waking, we feel we can remember the dream, but this memory rapidly fades away. Even whilst desperately trying to remember aspects of the dream, we feel the memory just melting away, and despite our best efforts, it's gone in just a minute or two.
In my 'attacks', I get a feeling a bit similar to this. It's as if a sudden strange thought enters my head for no reason. It seems that a memory has just surfaced, a recent memory which had been forgotten. It feels a little like deja-vu. My usual reaction (I can't help it) is to try and remember more, but it just melts away, like the dream does after waking. I can't describe the memory, because it's different each time and never makes any sense. It is disturbing to suddenly have a thought pop up in your head which does not make any sense.
At the same time, I feel distant, disconnected from the world. I am still awake and able to respond, though might seem distracted. I still know where I am, but my surroundings seem unfamiliar. At this point a feel a pressure in my head. This lasts for a few seconds.
Immediately following this, I start to feel very warm indeed. If I'm in bed, I shake off the covers to cool down. This lasts for a few minutes.
The warm feeling is a relatively new symptom. I used to get a aching in my left arm instead, but I don't really get that any more.
The strength of the attack varies from very strong, where I can feel what is almost like an electric shock in my head, right down to the very weak, where I'm not really sure if it even happened at all.
Also, they come in clusters (this is a recent change) - they used to come about once every week or 2, but now I can go for several weeks feeling fine, and then have a big attack followed by dozens of smaller ones over a 3 or 4 day period, before fading away again. During this time, everything just seems a bit off, as if familiar places are slightly sinister and creepy, and I have a vague unease which I can't really describe, and I can't concentrate. This subsides over a day or 2 after the attacks die down.
I've had things like EEG, MRI scan, but everything's come up clean so far. I appear to be a bit of a mystery.
