around others during a seizure

[petero]

do you normally ask others what happened during your seizures?
do you expect others to be able to have an idea, especially those knowing you have epilepsy?


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[CQ:)]

Alot of my auras/ partial seizures seem to be when I'm on my own so in that case I just go on what I remember.

But my Mum & my boss at one of the places I volunteer at have both seen me take quite a few partials, so they usually tell me if they think I had a seizure. I sometimes deny it at 1st then realise maybe I did have a seizure because I nearly always have an aura 1st so eventually ask them what happen during the seizure so I can write it down for my records.

 

[Aubrey]

Sometimes I want them to tell me. Sometimes it makes me cringe with embarrassment but we try to laugh because what else can you do? Usually they want to tell me, I think because they feel you deserve to know, or that they should be able to share that with you. Sometimes I want to know why my body is such a mess or how I got underneath the table or if I hit somebody. It never really stops being weird, hearing the things you do when you are not in control of yourself. I freeze, turn my head to my right, and begin trying to jab myself in the eye, frequently enough for it to be a distinct pattern. That is a very strange things to listen to somebody tell you about.

With partials, especially if they are brief, I will also argue about whether I had one or not - other people can lose concentration - but you lose your train of thought for a second and it must be a seizure, right? But it has happened so frequently I have just stopped arguing for the most part.

 

[valeriedl]

I always ask for two reasons, because I want to know and because I want to beable to tell my neuro what I did.

Alot of my seizures I'll just stare into space, maybe try to talk or things like that. With others I'll actually do things. I also want to know how long they lasted. This way I'll beable to tell my neuro as much info about the seizure that I had so that he can determine how bad it was.