Auras?

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Cinnabar

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I've read allot about auras, particularly because I don't seem to get them. I read that some are unpleasant then pleasant. Regardless, the important thing is that they give you a warning that a seizure is on it's way. The only warning sign for me is knee buckling and I don't believe you can consider this an aura. In all my reading, it's not mentioned. I have Temporal Lobe Epilepsy. I don't know if the difference lies here. Is anyone here aura free? I just don't understand my situation. I wish I had warning signs.
 
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Hi Cinnabar, from what I understand my auras are simple partial seizures. I have TLE also. If i get an aura before a complex partial, I don't remember having it. Sometimes I get a simple partial and then feel like I'm going into a CP but somehow get stuck, if that makes sense or it may well be that I have actually had a complex partial but get very confused after it.

So it could be possible that you are getting an aura but just have no memory of it.
 
roo, I'm digesting this and it does make some sense. It's before my Simple Partials that my knees buckle and and I shake having to have to crawl on the floor to get to a safe place.

When I saw my neuroligist after my first seizure, a Tonic Clonic, I asked him why so late in life? He told me that I may have had Simple Partials all my life. Back when, I did experience Out of Body Experiences, time warps, and garbled speech. Auras?
 
I am

one of those that is aura free. And like you, I wish I wasn't. I'd LOVE to have some warning........especially with the blinkin' T/C's.....even if they're nocturnal, I'd still like SOME kind of warning.....*eyeroll*
 
Oh thank you! I thought I was the only one here without auras. Maybe, we should invest in a seizure assistance dog. But I'm more of a cat person. Wonder what they could do?
 
A member who hasn't been around lately, Ziggidypoo, had a cat who warned her of seizures, if I remember correctly. So, maybe Sage could learn?
 
Out of body experiences and time warps definitely sound like Auras to me. I have temporal lobe seizures or had I can now say. Thats primarily what I had up until the last year and a half. I'm starting to believe that auras are seizures.
 
Auras ARE

simple partial seizures.

I, however, don't have those.......even though I have FOUR types of seizures, I am not blessed with them. *sigh*

And as much as I would LIKE to have a pet, so that I might be able to TRY to train it as a seizure assistance animal, hubby will not permit it *eyeroll* because my son's girlfriend is allergic to cats and dogs.
 
No auras at all here. I wish I did. Then maybe I would have more confidence. Since August I hardly get out anymore, scared that its going to happen to me out in public and I'll end up in the ER again.
 
Mine are these lights that shine, hard to explain, also confusion, sometimes a time freeze or warp feeling, anyone ever smelled the past? A smell from the past?

Billy.
 
Sage is certainly smart enough to learn. When I'm feeling down or sick she immediately jumps on my lap and licks my hand. Her cat kisses. So, she is probably a good candidate.
 
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Flinnigan Years back I would have OBE's. When coming back I couldn't speak for about five minutes. I've heard that this happens with seizures.

Meetz I didn't know that Simple Partials are auras. In that case, I suppose I do have auras as I've had plenty of SPs.

Cathyanne I went through a long period of time frightened to go outside fearing that I'd have a seizure in public. How would I be treated? A fear of helplessness. Now, I've just begun driving. At first I was nervous, to say the least. But now on the road I'm too busy concentrating. I mean really concentrating. So, the thought of seizing rarely occurs.

Billy You raise a very interesting question. I do have scents of the past but I need to be around people or my environment which triggers a similar smell. It just doesn't come out of the blue for me. I have had time freeze. Feeling like I've been someplace for an hour when in fact I've only been there for five minutes.
 
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Mine are these lights that shine, hard to explain, also confusion, sometimes a time freeze or warp feeling, anyone ever smelled the past? A smell from the past?

Billy.

Billy,
I have sensory seizures; more than likely simple partials coming through the five senses. I smell both bleach and ammonia. And my doc says that it's common for people to have smells from the past as auras. :twocents:
 
I had

a VERY ODD experience yesterday, and it was making it EXTREMELY difficult for me to do anything.....even reply on here. Some of my simple replies on here took forever to do. Others I had to actually write in a word processor for once.

I made an omelet yesterday--this is normal--and was using a new pan made specifically for omelets that I was given by my daughter and her boyfriend. Nice pan.... Realized that the one side was done, and flipped it over, wait 2 minutes to give it enough time to cook. Suddenly there was this horrible smell. I immediately turned on the fan above the stove (on high).

(Now, mind you, I have the pan CENTERED in the middle of the burner.)

There are 2 handles on this pan....a long one to carry it with, and a small one to shut it. And I'll be darned if the small one hadn't started to BUBBLE.

I immediately got the omelet out of the pan, put the pan in the sink and started running water over it. A few minutes later, I washed it out. But there was this HORRIBLE SMELL. An indescribable, HORRIBLE smell. I immediately got a terrific headache, and went to lie down.

Hubby left to go do so errands, but I decided it probably wasn't best for me to sleep, I was NOT feeling right. My head (forehead and scalp in particular, but even the tips of my ears, too) felt TOTALLY NUMB. Parts of it still do. I called him while he was out, and asked where the box fan was--I wanted to prop open the window, even with snow coming down quite a bit, and put a fan in it to better circulate the air.

He told me where the fan was, and then told me to just get DOWNSTAIRS where the concentration of the fumes was not as bad. He'd have one of the kids do it. HA. They were all gone. I got it put in the window, and nearly fell back down the stairs.

My oldest son and his girlfriend walked in a few minutes later--he'd gotten the call from his dad. She came down and checked on me, and he dealt with the stuff in the kitchen first, made me some tea and water to start drinking. Then he came down and checked me over himself....she's not ever had to deal with my seizures before.

My son and his girlfriend were going to go watch a movie upstairs for a while....but his room is right over the area where I'd be, so he could hear anything.

I forced myself to get up and move.....do some laundry (brainless act for me) some ball exercises (again brainless act for me) and other minor things.

I DID take some extra meds later on in the evening as the strange feelings of numbness continued throughout that entire area. There was some twitching going on that normally doesn't go on....it's normally covered by my meds sooooo, I have to wonder.........

WHAT DO YOU ALL THINK??? Have I fallen off my rocker, did the fumes get to me and cause problems, or what?

I'm feeling better today..........still a little numbness on my scalp, but the rest of me is better.....

Sorry for the novel!

Meetz
:rock:
 
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Hi Meetz -- funny feelings in the head, like numbness, and the twitchiness are fairly common kinds of seizures for frontal lobe epilepsy. Maybe the smell of the burning pan behaved as a trigger for you, deepening the sensation of an awful smell, and then further? I suspect the fumes alone were probably not strong enough to cause the effect, unless you put your nose directly above and inhaled deeply several times.
 
Maybe you weren't really smelling anything and the smell its self was an aura. The numbness is quite common and most likely a seizure sympton. Take of yourself and rest through it. Most importantly don't panic.
 
Unfortunately, I

was directly over the stove when it happened so I got quite a few strong whiffs of the smell, so that's why I'm not sure what the heck's going on. On top of that, hubby and everyone else that came in the house smelled it too.....

The smell's gone now....it took quite a while to dissipate. My head is STILL throbbing, though. *sigh*

On the upside, to make me smile, my classical music is playing to soothe me, I'm about to take a hot shower, make homemade pasta (the hard way) and there are 2 little kids outside who volunteered to shovel my driveway for 50 CENTS!!! Of course, I gave them 50 cents EACH, and some holidays cookies.....

Off I go to shower......YEAH!!!!
 
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Have you had horrible smell auras in the past if so maybe it did trigger a seizure. The brain likes those familiar patterns to tell it what to do. Thats why I'm working very hard to change the way I live to try to remove those old triggers.
 
Nope, never

had it before, that's why it was soooooo ODD.......and in a way, painful, too.
 
Yea thats not a pleasant feeling I get it all the time. I thought it would go away after surgery but not. Now I had a strange thing today. I smelled an old familiar smell not a bad one either but it was the smell of a room that I had a lot of seizures in and yea it did scare me a little. I stopped for a moment and waited for something to happen but was fine still seizure free now for 7 months.
 
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