Back on The Keto Bandwagon For Life

Bidwell

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Deeds, I really applaud your good sense to make your executive decision and I am crossing my fingers that the next steps go well.
 

AlohaBird

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Deeds, I really applaud your good sense to make your executive decision and I am crossing my fingers that the next steps go well.
:agree:

One of my staple dishes to cook is a frittata in a 10" diameter frying pan.
Basic frittata recipe is saute meat and veggies of your choice in a bunch of butter or coconut oil. Then whip up 12 free range eggs with some coconut cream (I sometimes sub in some soft goat cheese) and pour the egg mix over the meat and veg and then put entire kit and kaboodle in the oven (be sure your fry pan doesn't have a melt-able handle). 350 degrees until puffy and lightly brown on top.

My normal portion of frittata would be half the pan i.e. 6 eggs and half the veggies/meat. Now I'm dividing the pan into four sections i.e. 3 eggs and 1/4 of everything else. But I feel just as satisfied.

Venison curry frittata with moringa pods and bell peppers for dinner. :)
 

deeds

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Thanks, I have purchased the books you are talking about. Very interesting.
I have been having wicked seizures this week, I had to lower my Dilantin since it was 134.
After a few weeks, they were 90 but tonight they were 40.
I don't know how that happened. I fell and hit my head this morning and I had to get a CT scan to make sure no concussion.
This is exhausting.
Must be beautiful in Hawaii
 

AlohaBird

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Thanks, I have purchased the books you are talking about. Very interesting.
I have been having wicked seizures this week, I had to lower my Dilantin since it was 134.
After a few weeks, they were 90 but tonight they were 40.
I don't know how that happened. I fell and hit my head this morning and I had to get a CT scan to make sure no concussion.
This is exhausting.
Must be beautiful in Hawaii
:hugs:

I'm glad you are giving Dr. Permutter a try. His website is interesting too. drperlmutter.com
 

Bidwell

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Deeds -- With everything else, a hit to the head like that is going to leave you exhausted, even without a concussion. Take good care of yourself!!!!!
 

deeds

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Thank You

I am the most responsible patient and yet.......
Seizures keep returning, bigger, better and longer than ever.
Help:hugs:
 

Bidwell

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Boy oh boy. And I can guess how come you are mentioning that you are "the most responsible patient." I bet you are. I am praying that you have good doctors that can meet you in their responsibility to you. Lots of them WANT to. Going through this without the idea that somebody, you or a doctor, might be blaming you, is bad enough. I am hoping that good doctoring is in your sphere. In the meantime, keep posting when you can.
 

Matthew74

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Deeds,

Do you have Ketosticks? You should be able to get them at the pharmacy. Seizure control didn't really kick in for me until I was at 40 or 80. I had good control at less than 20 carbs a day. I didn't keep track of ratio, but I was at 2:1 or 1:1. The diet worked for me as far as seizure control, but I needed a lot more help. Get a nutritionist and use KetoCalculator. Give the Charlie Foundation a call. It's important because disaster can ensue. My body couldn't handle all the fat and protein, with a lack of other nutrients. John's Hopkins runs an adult keto clinic.
 

deeds

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I always find, in a seizure storm the medical people are always trying to pin point something that I have done incorrectly which is totally not the case.
I am alarmed because I live alone and I keep hurting myself.I just got a delivery of some medicinal marijuana.
I think it could be of some help.
Let you know.
It is high CBD very low in THC...
 

AlohaBird

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Deeds,

Do you have Ketosticks? You should be able to get them at the pharmacy. Seizure control didn't really kick in for me until I was at 40 or 80. I had good control at less than 20 carbs a day. I didn't keep track of ratio, but I was at 2:1 or 1:1. The diet worked for me as far as seizure control, but I needed a lot more help. Get a nutritionist and use KetoCalculator. Give the Charlie Foundation a call. It's important because disaster can ensue. My body couldn't handle all the fat and protein, with a lack of other nutrients. John's Hopkins runs an adult keto clinic.
Other resources that are geared towards adults that might help.

Jimmy Moore has a website called Livin La Vida Low Carb and a book called Keto Clarity.

Nora Gedgaudas has both a book and a website called Primal Body, Primal Mind. She is also a neurofeedback practitioner.

Great book by Drs. Phinney and Volek called The Art and Science OF Low Carbohydrate Living. They are the consulting MDs to the Atkins Foundation.

One of the biggest mistakes a lot of people make in starting a keto diet is massively overdoing the protein portions. And I think the flaw in the original Charlie Foundation Style keto diet especially when applied to adults is that it relies too heavily on cow milk products.

These two things, excess protein and a sensitivity to milk can cause a lot of people to have totally unnecessary trouble with this.

I always find, in a seizure storm the medical people are always trying to pin point something that I have done incorrectly which is totally not the case.
I am alarmed because I live alone and I keep hurting myself.I just got a delivery of some medicinal marijuana.
I think it could be of some help.
Let you know.
It is high CBD very low in THC...
Tell them to stuff it when they start trying to blame it on you.

Oh, and pass the doobie :)

I wish I had access to those seeds here.
 

masterjen

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I agree the high fat diet should be done under medical supervision. For some people their cholesterol and triglyceride levels can go through the roof, and this can be a significant health risk. I found out I wasn't suited for a high fat diet due to issues with my pancreas and mild elevation of some liver enzymes, thought to be caused by celiac disease but not certain. Abnormal pancreas and liver enzyme levels were picked up via just a blood test, and I was told to avoid high levels of all types of fat, but particularly animal fat. My point being, if you want to do the ketogenic diet at least get some testing done before and intermittently during this diet to ensure your body is handling all that fat (and likely reduction of other nutrients) appropriately. Damage from a high fat diet can appear down the road as well, most well-known in the form of heart disease.
 

AlohaBird

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Ooooh, Masterjan, pleeeeeese give the above about the evils of fat a re-think^^^^^^^^^^^^

http://www.today.com/health/ending-war-butter-are-fatty-foods-really-ok-eat-2D79795749

I do agree with you about people with a damaged pancreas having trouble with a high fat diet. But if an imbalance of liver enzymes is caused by Celiac disease, then the best thing in the world is at least a paleo style diet. The body has an amazing capacity to heal itself if we stop assaulting it with foods that are not genetically compatible and start giving it the building blocks it need to repair health. You can't have neurological health without fat. The myelin sheaths that cover all your neuronal connections are made of fat.
 

deeds

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Matthew,
Yes, I have ketostix.
Do you think the change in diet, pretty much modified atkins, as I don't measure anything, could have changed the way my body is metabolizing the Dilantin?
I am barely in ketosis, its been about a week and a half and I can't find a nutritionist who will take on this cause. I believe it needs professional guidance. I called The Charlie Foundation to see if they had a Toronto affiliate. The Children's Hospital here, Sick Kids, has a huge epilepsy /diet program but not much support for the adults.
 

masterjen

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I do agree with you about people with a damaged pancreas having trouble with a high fat diet. But if an imbalance of liver enzymes is caused by Celiac disease, then the best thing in the world is at least a paleo style diet. The body has an amazing capacity to heal itself if we stop assaulting it with foods that are not genetically compatible and start giving it the building blocks it need to repair health. You can't have neurological health without fat. The myelin sheaths that cover all your neuronal connections are made of fat.
I don't avoid fat; like I said, I am not suited for a high fat diet :) My various specialists have helped me to come up with an appropriate and healthy amount of the good fats that I can consume along with omega-3 supplements. As for the paleo and mediterranean diets, I have been eating very close to these ways anyhow because I have always focused on eating only healthy, whole foods. And since having to go gluten free my diet is more "paleo" than ever lol.
 

Bidwell

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Deeds -- Hope the medical marijuana has helped and that as time passes ideas about how to get good help take shape. It is hard to tolerate the truth that the passage of time all by itself is often a blessing!
 

deeds

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Oh So True

I am always happy to sit tight and watchfully wait unless my brain is not working properly.
Happy to report that my Neurologist just sent me an email telling me to go back to 300mg Dilantin at once.
Music to my ears. What happened this past few weeks need never happen again.
I Hope,
:pop:
 

AlohaBird

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Matthew,
Yes, I have ketostix.
Do you think the change in diet, pretty much modified atkins, as I don't measure anything, could have changed the way my body is metabolizing the Dilantin?
I am barely in ketosis, its been about a week and a half and I can't find a nutritionist who will take on this cause. I believe it needs professional guidance. I called The Charlie Foundation to see if they had a Toronto affiliate. The Children's Hospital here, Sick Kids, has a huge epilepsy /diet program but not much support for the adults.
I know that ketosis changes how I metabolize my meds in that I don't need as much to keep the same seizure control. I don't know specifically about dilantin. Ketosis is not some weird fringe bizarre state of being to your body. It is the most natural thing in the world. You are in a mild state of ketosis every morning when you wake up (as long as you haven't been up in the middle of the night raiding the fridge). A child is in ketosis the whole time they are being breast fed.
I do agree that you are in need of an MD consult about your meds but you don't need a professional to tell you to eat real food. Eggs, fish, meat, veggies, salads, fruit, nuts. it's not that complicated and it's not that hard. I think people over-think the whole thing too often.

I don't avoid fat; like I said, I am not suited for a high fat diet :) My various specialists have helped me to come up with an appropriate and healthy amount of the good fats that I can consume along with omega-3 supplements. As for the paleo and mediterranean diets, I have been eating very close to these ways anyhow because I have always focused on eating only healthy, whole foods. And since having to go gluten free my diet is more "paleo" than ever lol.
Great! That will help your gut heal and help with nutrient absorption too. What I was suggesting that you re-think is the way you made the pronouncement that high fat leads to heart disease as surely as night follows day. Because of your pancreatic issues high fat does not work for you, but real fat (not the plastic trans fat stuff) never caused anyone a heart attack unless it was paired with a high sugar intake. It is glycation that causes the LDL particles to become damaged and oxidize. This is when they become the dreaded "bad " cholesterol. Un-glycated LDL never hurt anyone.

Deeds -- Hope the medical marijuana has helped and that as time passes ideas about how to get good help take shape. It is hard to tolerate the truth that the passage of time all by itself is often a blessing!
:agree:
 

deeds

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Seizure Dog

I am on a waitlist for one. I had to wait for my old pug to say goodbye before I could qualify, this too shall pass. Its all about losing the fear to go outside....
I will keep breathing.
:hugs::hugs::hugs::hugs::hugs::hugs::hugs::hugs::hugs::hugs:
 

masterjen

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real fat (not the plastic trans fat stuff) never caused anyone a heart attack unless it was paired with a high sugar intake. It is glycation that causes the LDL particles to become damaged and oxidize. This is when they become the dreaded "bad " cholesterol. Un-glycated LDL never hurt anyone.
This is new to me. Can you provide links to scientific papers on this? Would make for interesting reading!
 

deeds

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Normal Eating Habits

I don't like to say that I was on a "diet" when essentially I started to eat whole, real foods. I was never a huge eater and I was always happy to wait until I got hungry. Now I am reading a lot about intermittent fasting and I find it fascinating since I always said I never got a seizure during the day until I put some food in my body.
Now, I am eating more but although I am not measuring anything I am using many nuts, seeds, oils, vegetables and chicken or fish.
I believe the glycemic index is of utmost importance so I look up things I am unsure of. In the fruit department, I am sticking to Berries for now but it is not at all difficult to eat this way.
My boyfriend has Celiac and we often dine together so already there is no gluten to be found.
Yes, luckily Canada is a great place to ask for Medical Marijuana!!!!!

I am thrilled to be given all my Dilantin back:clap::clap::clap::clap::clap::clap:
 
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