Bre

jmspgh

New
Messages
4
Reaction score
0
Points
0
My daughter was just diagnosed with BRE. Her EEG showed that she has a mild tendency for seizures (has had 1 that I know of) She is scheduled for MRI (not sure what they are looking for at this point) She is healthy otherwise. I need to decide if I want to put her on medicine at this point or not. (Keppra or Trileptal)

I'm trying to go down a checklist of things I need to figure out or provide for her. 504 plan? It took her 6 hours to be back to herself ... so might affect homework/going to school. What happens on the bus? Avoid certain food/caffeine? Does anyone have a seizure alert dog? How do I know if she is having a seizure in her room?

The ER did cat scan, chest xray, ekg & bloodwork ... all normal & sent off to her pediatrician.

She is happy as a clam. I'm making myself goofy trying to learn about it and watching her.
 

jmspgh

New
Messages
4
Reaction score
0
Points
0
Should she have a medic alert bracelet? What info should be on it? Someone mentioned make sure you drink a lot of water when traveling. Will she have a tendency to have a seizure if dehydrated?
 

Ruth

New
Messages
3,025
Reaction score
0
Points
0
There are a few people here on the forum who have alert dogs. I took a school bus when I was little. I am 72 years old now. You have to decide whether the crime rate whether you should let her take the school bus.

Today, I would take her to school rather than a school bus.

Bernard made this forum out of love for his wife Stacy. That love permeates throughout the whole forum.
 

seagull

Veteran
Messages
2,301
Reaction score
2
Points
158
Bernard made this forum out of love for his wife Stacy. That love permeates throughout the whole forum.[/QUOTE]

IT do indeed..and don't have be hot speller everyone helps everyone best of ability..
I was on forum few years back got into muddle with passwords getting locked out so rejoined as seagull easier this way
 

jmspgh

New
Messages
4
Reaction score
0
Points
0
My other question is about whether to medicate her or not. She has had 1 seizure 3 weeks ago. I expected another by now. Do seizures get progressively worse? Do they happen more often. Sorry for all the questions ... I'm still trying to wrap my head around all this.
 

Ruth

New
Messages
3,025
Reaction score
0
Points
0
Don't be sorry for asking questions. It's the only way we find out what's what.

Seizures vary from person to person. They usually don't have a set pattern. That is frustrating.

For instance, my sister has epilepsy too. She had seizures from age 6 to 16. Then they stopped. Her seizures came back when she was in her 50's. They were worse.

My seizures started when I was 6 and they never went away. I am 72 years old now.
 

qtowngirl

CWE Supporter/E Hater
Supporter
Messages
2,557
Reaction score
0
Points
0
My other question is about whether to medicate her or not. She has had 1 seizure 3 weeks ago. I expected another by now. Do seizures get progressively worse? Do they happen more often. Sorry for all the questions ... I'm still trying to wrap my head around all this.
what did the doctor who diagnosed her say? E diagnosis and aed's are usually hand in hand, so i would think a prescription would have been written the same day.
and don't put too much into that she hasn't had another one for three weeks, there isn't usually an indication as of when. when diagnosed with E that means seizures are chronic, some have their seizures a year apart while others are many daily. and for a number of us yes, they do get worse, but for some that 'worse' doesn't happen for years or decades.
best way for seizure control is not only going on the proper meds but taking them religiously, and after awhile it's just another part of daily life.
:hugs:
 

zombelina

New
Messages
346
Reaction score
0
Points
0
Do seizures get progressively worse?
Benign rolandic epilepsy can be very different from other types of epilepsy in terms of how long someone will have seizures and whether they get worse. I have read that with BRE, kids frequently grow out of it by their teen years. I have not heard of it being progressive (I'm sure you can find more info on that), but seizures do tend to beget seizures ("kindling"). But remember that on here we are each sharing stories of all different types of epilepsy and are not experts.

I was diagnosed with epilepsy as a child-I know it was very scary for my parents (and me). I tried not to talk to them about it because I didn't want to upset them. Kids are very intuitive so keep being direct and honest and try to find that balance between safety and overprotectiveness. Child life specialists, counselors etc. can help kids or families learn to cope with new diagnoses. It sounds like your daughter seems to be coping well, but just something to keep in mind. :)
 
Top