Can Anyone Help Me??

[Elaine H]

Hi Guys

Help!!!!!! In all my twenty four years with epilepsy, I have started having really weird sort of aura type things happening to me, and I wondered if anyone else has experienced the same?

It happens more in the morning, but all day too, I flush ice cold down the right side of my body from my neck to the sole of my foot, then I just feel so sad, unhappy, scared, more like terrified actually, I even get like a feeling of dread in my stomach "butterflies" and then as quickly as it happens, it stops, and I'm like really happy and euphoric, God it has actually stopped me going out on my own it is that intense and frightening, I can almost feel the hair on the back of my neck stand up, it is awful.

I just wondered if any of my CWE buddies had experienced this, would be cool to hear from you guys?

I've started my training to be an Epilepsy Information Volunteer, and I go to London next Saturday for part two, I am also working full time at the moment, and have been pretty tense all week, so this could be why I'm having these strange auras, I also have the godawful taste in my mouth, not nice!!

Hope you are all ok, and it's nearly Summer guys!! :woot:

Lotsalove

Lainey xxxxxxxxxxxxxxxxx

 

[Jvere]

I was having that exact thing -- sometimes preceded by the feeling that cold water had just been poured over some part of my body, sometimes preceded by a hot flash -- and was told that was a simple partial. I used to think they were panic attacks (or effects of my drinking, before i gave it up) so I went years without telling anyone I was having these. But yeah, it was disturbing enough and sometimes often enough to keep me home as I, too, was afraid to be out in public when it happened.

Even on meds, I occasionally have this happen but now I know what it is and that I can count on it being over within a minute. But it is still difficult if it happens when I am in the middle of a conversation and I have to pretend nothing is wrong with me. I am so sure that my heart is going to beat so hard as to knock itself right out of my chest, and I worry that people can see the fear in my eyes.

You may have nailed it when you said you've been very tense. Like I said, all I know to do is just breathe and know that it wiill be over in 60 seconds. Heh. Sounds easy enough, right?

I'm new to all this though, so I am sure someone else may have better advice. Maybe supplement with and anti-anxiety med? Definitely get more sleep (sure wish I could!! ) and stay hydrated.

(((hugs!)))

 

[Potter Freak]

I have that cold feeling too it drives me nuts it feels like it goes on forever

 

[PhylisFeinerJohnson]

Oh that nasty taste in my mouth. It's metallic. I used to think it was the Dilantin when I was younger...but now (it only took umpteen years), I realize it's a aura. So i just try to stop...calm myself..and do some deep breathing.

Not much help, I know. But that's what works for me...