kirk267
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Hi how's everyone doind now days???
Me you ask??? I think I'm going INSANE !!!!!
I'm having an overwhelming amount of stress these days because I'm having major problems ever since my fingers got crushed by the brake press machine I was operating on October 16th 2007.
This hand injury is classified as a traumatic injury since right in front of my own eyes the brake press machine malfunctioned and crushed my 4 fingers and basically destroyed them.(they were dead, and just hanging from skin only )
For me it's a living nighmare that's way worst then any of the most scariest and bloodiest movies I've ever seen in my entire life.
I still remember that entire incident and how it totally stripped me of my freedom, independence, and the good life that I had previous to the injury.
The plastic surgeon that reconstructed and got life flowing somewhat back into 3 out of 4 fingers (pinky finger got amputated) said that it was not wise to live on my on for 9 months to a year prior to the date of my injury so I had no choice but to move back into my parents place.
I still have chronic pain that sometimes on a daily basis just comes out of nowhere and am presently on a AED and vein painkiller called gabapentin.
This chronic pain is causing all sorts of TROUBLE like making my seizures go out of control even though I'm taking in my opinion more then enough AED's to control them including Lamotrigine, clobazepam, dilantin, and Gabapentin.
I'm also on citolapram for depression and Zoplicone and Seroquel for my sleeping disorder.
So this hand injury has not only caused my epilepsy to go crazy and if it does I thought I let you know that it causes a sleeping disorder which brings up the 2nd problem long term insomnia, and the third major depression issues.
I noticed when I looked up DILANTIN the most recent AED I've been prescribed which has already been over a month since I 1st started taking it that it causes blurred vision, unsteadiness, nausea, MOOD CHANGES OR CONFUSION, slurred speech, rash, INSOMNIA , headache just to mention a few. The side FX I capitalized above are the side FX that I am personally experiencing myself.
And I have noticed that when I 1st started taking this AED that i felt more depressed and now I'm currently diagnosed with possibly bi-polar depression.
I got a psychiatrist to diagnose me but since my neurologist talked to them and told them that my AED is causing alot of negetive side FX they could'nt really confirm that I had bi-polar depression.
I talked to my neurologist about leaning me off of some medications but he said that if he decreased the dosage on even just 1 of them it could cause more seizures or maybe even gran-mal seizures.
And it seems he does'nt what to recommend any alternative epilepsy treatment like neuro feedback for example.
So I'm very confused and frustrated because it seems that my neurologist,plastic surgeon, and psychologist are just as frustrated and confused as I am because they don't want to add anymore medication because it may add more side FX to list I mentioned above. And they said that and I agree that I'm on enough medications presently that if they add more it's not going to really help because in long run it's not good for my body.
So just yesterday I talked to a spiritual care counsellor and set up another appointment with him next week so I can just vent (talk) all these problems I'm having out with him.
And it seems so far that it's helping I don't feel as angry, confused, or frustrated as I was in the last few previous days.
Your wondering why I'm typing to you about other parts of my life and just not epilepsy alone?
It's because I thought I'll give you the full picture on how my epilepsy is affecting my whole life and hopefully you get a more clear and more understanding about HOW IT'S REALLY MENTALLY PAINFUL TORTURE sometimes.
In reality if I step back for a moment and think whether or not I have bi-polar depression I know that the answer is NO, but it never hurts to be on the safe side like getting psychiatric counselling, seeing a psychiatrist etc.. Right?
Have any of you gone through any of the problems or similar problems that I have gone through thus far in my life ( I know of course that everyones situation is different in 1 way or another) and know any additional ways of coping with these problems I've typed out above and are willing to share them with me?
I thank you all for your suggestions!
Take Care!
Me you ask??? I think I'm going INSANE !!!!!
I'm having an overwhelming amount of stress these days because I'm having major problems ever since my fingers got crushed by the brake press machine I was operating on October 16th 2007.
This hand injury is classified as a traumatic injury since right in front of my own eyes the brake press machine malfunctioned and crushed my 4 fingers and basically destroyed them.(they were dead, and just hanging from skin only )
For me it's a living nighmare that's way worst then any of the most scariest and bloodiest movies I've ever seen in my entire life.
I still remember that entire incident and how it totally stripped me of my freedom, independence, and the good life that I had previous to the injury.
The plastic surgeon that reconstructed and got life flowing somewhat back into 3 out of 4 fingers (pinky finger got amputated) said that it was not wise to live on my on for 9 months to a year prior to the date of my injury so I had no choice but to move back into my parents place.
I still have chronic pain that sometimes on a daily basis just comes out of nowhere and am presently on a AED and vein painkiller called gabapentin.
This chronic pain is causing all sorts of TROUBLE like making my seizures go out of control even though I'm taking in my opinion more then enough AED's to control them including Lamotrigine, clobazepam, dilantin, and Gabapentin.
I'm also on citolapram for depression and Zoplicone and Seroquel for my sleeping disorder.
So this hand injury has not only caused my epilepsy to go crazy and if it does I thought I let you know that it causes a sleeping disorder which brings up the 2nd problem long term insomnia, and the third major depression issues.
I noticed when I looked up DILANTIN the most recent AED I've been prescribed which has already been over a month since I 1st started taking it that it causes blurred vision, unsteadiness, nausea, MOOD CHANGES OR CONFUSION, slurred speech, rash, INSOMNIA , headache just to mention a few. The side FX I capitalized above are the side FX that I am personally experiencing myself.
And I have noticed that when I 1st started taking this AED that i felt more depressed and now I'm currently diagnosed with possibly bi-polar depression.
I got a psychiatrist to diagnose me but since my neurologist talked to them and told them that my AED is causing alot of negetive side FX they could'nt really confirm that I had bi-polar depression.
I talked to my neurologist about leaning me off of some medications but he said that if he decreased the dosage on even just 1 of them it could cause more seizures or maybe even gran-mal seizures.
And it seems he does'nt what to recommend any alternative epilepsy treatment like neuro feedback for example.
So I'm very confused and frustrated because it seems that my neurologist,plastic surgeon, and psychologist are just as frustrated and confused as I am because they don't want to add anymore medication because it may add more side FX to list I mentioned above. And they said that and I agree that I'm on enough medications presently that if they add more it's not going to really help because in long run it's not good for my body.
So just yesterday I talked to a spiritual care counsellor and set up another appointment with him next week so I can just vent (talk) all these problems I'm having out with him.
And it seems so far that it's helping I don't feel as angry, confused, or frustrated as I was in the last few previous days.
Your wondering why I'm typing to you about other parts of my life and just not epilepsy alone?
It's because I thought I'll give you the full picture on how my epilepsy is affecting my whole life and hopefully you get a more clear and more understanding about HOW IT'S REALLY MENTALLY PAINFUL TORTURE sometimes.
In reality if I step back for a moment and think whether or not I have bi-polar depression I know that the answer is NO, but it never hurts to be on the safe side like getting psychiatric counselling, seeing a psychiatrist etc.. Right?
Have any of you gone through any of the problems or similar problems that I have gone through thus far in my life ( I know of course that everyones situation is different in 1 way or another) and know any additional ways of coping with these problems I've typed out above and are willing to share them with me?
I thank you all for your suggestions!
Take Care!