Changes in seizure patterns

[Bernard]

My wife's seizure patterns have included (in order from when I met her):

• 1 TC every 2 years with daily absence seizures
• Seizure free and med free for 4 years
• 1 TC sporadically (every month or so) with atonic (drop attacks) and myoclonic (jerk) seizures a couple times a week
• 1 TC per week with atonic (drop attacks) and myoclonic (jerk) seizures almost daily
• TC seizures singly or in status clusters on a sporadic basis with myoclonic jerks or CPS several times a week (no more atonic seizures)
• TC status clusters around menstruation time (monthly or bi-monthly) with myoclonic jerks or CPS a couple of times a week (mostly in the week preceding menstruation)

Changes in seizure patterns occurred with changes in treatments and with pregnancies.

I was reflecting on this the other day and thought that if Stacy had seen a new neurologist at different points over the last decade or so, she would likely have been given completely different diagnoses.

 

[Birdbomb]

You can also get different diagnosis with different neruologists, too. One EEG I had, two different neuros came to very different conclusions. onder: One saw temporal spikes, the other said it was normal!

Go figure.:giveup:

 

[RobinN]

I have seen that just in the short year we have been dealing with this.
I have read where some AED's can actually cause more seizures rather than less.
We also lost about 6 months of treatment due to the wrong diagnosis.

 

[brain]

You can also get different diagnosis with different neruologists, too.
Go figure.:giveup:

I hear you Birdy on that one!

And I would be confused!
:?: