Clevelandd Clinic

[sconesail]

Hi All,

Has anyone here been to the Cleveland Clinic for epilepsy? If so, what was your experience?

I currently faint or fall anywhere from 4-10 times a day. I have been diagnosed with Neurocardiogenic syncope- but due to some new symptoms, my parents (both retired physicians- mother-pediatrician, father diagnostic radiologist) are wondering if this could be some form of seizures. Recently, i have had several spells which may indicate seizures. I had a video EEG two years ago, but at the time, I only fell when I was standing or sitting and they did not want me to get out of bed. The results came back inconclusive. We are trying to get an ambulatory EEG done, but the local neuro will not do it- he will only treat the severe migraines.

I spoke with someone at the Cleveland Cliniic today and they do have doctors who specialize both in Neurocardiogenic syncope and in epilepsy.

I would be very interested to know anoyones experience- good or bad- with cleveland clinic.

Thanks,

sconesail

 

[mel239]

I see Dr Alexopoulos at the adult epilepsy unit at Cleveland Clinic--I LOVE HIM!!! He only sees patients on Mondays and it takes a couple months,but he is GREAT!! His PA was terrible,but I heard she is gone and his assistant Joyce is a wonderful beautiful informed on the ball person--he genuinely cares and treats the person,not the tests and never rushes.One of my appts lasted almost 2 hrs.The first day I met him,he walked into the room and said-"all of your problems are my problems now" They do like to push the video monitoring unit and are big on surgery for epilepsy--pamphlets everywhere.Of course,when I was in the monitoring unit,I was seen by an epileptologist who was a real jerk-but my doc is fantastic