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I hope it is ok if I post here, I am not sure what else to do. This is going to probably be long, so sorry in advance!
My daughter is 6 years old. She is the happiest kid I have ever seen, very outgoing and talkative, and very bright. She has always been really healthy, just typical stomach bugs, colds, the occasional ear infection, and she wears glasses for a slight astigmatism. In June she started getting bad headaches every few weeks. The Dr started her on allergy medicine. The headaches started to get more frequent, and in September they tweaked her prescription on her glasses. I was hoping that would help, but than more and more headaches.
She was just diagnosed in November with Auditory Processing Disorder(APD). Basically it means that her hearing is wonderful, but her brain doesn't process/takes longer to process things. She asks us to repeat ourselves a lot, has a hard time following multi-step directions, and has a REALLY had time hearing when there is other noise. She is so smart, but was struggling with school(1st grade), which is how I knew there was something going on.
I thought maybe the strain of how hard she has to focus with her APD was making her head hurt, but she was getting them almost every day. The Dr's pushed and got her in for an MRI, which was totally clear.
Which brings us to this week, lol. When my daughter woke up on Wednesday, she had a headache really bad, right behind/above her ear. I told her to rest, gave her breakfast and lots of water, and she didn't complain about it anymore. A few hours later as she was eating lunch, she made a frustrated noise. I asked her what was wrong, and she said the flash of light was bothering her. It was a flash of white light in her peripheral. I assumed it was a migraine, something I have zero experience with. I called her pediatrician's office, but they told me to call her eye Dr, just to be safe.
After talking to the Dr's office, and my husband, about it on the phone, my daughter started telling me about the fact it wasn't the first time she saw the light. She was saying it like I should know what she was talking about. Within an hour, she said she was seeing shapes. It only lasted like 15 seconds. I asked her what she was talking about, and again she started telling me about colorful shapes she sees that dance around, and said it like I should know what she was talking about. I ask if she sees them a lot, but she doesn't see them every day, but more than just a few times. I asked if it is only when she rubs her eyes, but she said no, she sees "falling donuts" when she rubs her eyes.
She isn't a kid that lies, exaggerates, fakes sick, anything like that. The way she said it, so matter of fact and like I should see what she saw, makes me 100% believe her. She drew a picture of what she saw, brightly colored shapes.
I took her to the Dr, and she brought the picture to show them. Her eyes look perfect. The Dr said we need to see the neuro(we had an appt scheduled for May, since it is a busy pediatric neurologist). He said since she had the clear MRI that was great news, but to get her into the neuro.
The next morning(Friday), she started freaking out about a smell. She was saying how awful it was. I sniffed everything, and nothing smelled. It went away for about 15 minutes, then came back again. Then left again. I called her Dr, and they are trying to get her into the Dr before May. She said it could still be migraines, but it could be a type of seizures. My son has febrile seizures, and I have never seen her stiffen and/or jerk like he does. No eye movements, nothing like that.
Today when we got to the grocery store, she said something about how she didn't know we were by train tracks. I asked what she meant, and she said since she heard the train whistle. There wasn't any whistle noise. We weren't by the train tracks at all.
So to sum it up, since this is totally a novel:
1)6 years old with APD
2)Headaches(less frequent now, but still a few times a month at least)
3)Sees white flashing light in peripheral
4)Sees "dancing" colorful shapes that follow no matter which direction she looks
5)Has told us before she heard someone say her name when she was sleeping, then woke up and no one was there.(At least a few time, we figured she just hear my husband or I talking)
6)Smells bad smells when there is nothing
7)No tremors, no zoning out, no stiffening
8)Heard whistling when there was none
Does it sound like it could be seizures? Her pediatrician's office called the neurologist on Friday and are waiting to hear back from them to get her in earlier than May.
TIA!
My daughter is 6 years old. She is the happiest kid I have ever seen, very outgoing and talkative, and very bright. She has always been really healthy, just typical stomach bugs, colds, the occasional ear infection, and she wears glasses for a slight astigmatism. In June she started getting bad headaches every few weeks. The Dr started her on allergy medicine. The headaches started to get more frequent, and in September they tweaked her prescription on her glasses. I was hoping that would help, but than more and more headaches.
She was just diagnosed in November with Auditory Processing Disorder(APD). Basically it means that her hearing is wonderful, but her brain doesn't process/takes longer to process things. She asks us to repeat ourselves a lot, has a hard time following multi-step directions, and has a REALLY had time hearing when there is other noise. She is so smart, but was struggling with school(1st grade), which is how I knew there was something going on.
I thought maybe the strain of how hard she has to focus with her APD was making her head hurt, but she was getting them almost every day. The Dr's pushed and got her in for an MRI, which was totally clear.
Which brings us to this week, lol. When my daughter woke up on Wednesday, she had a headache really bad, right behind/above her ear. I told her to rest, gave her breakfast and lots of water, and she didn't complain about it anymore. A few hours later as she was eating lunch, she made a frustrated noise. I asked her what was wrong, and she said the flash of light was bothering her. It was a flash of white light in her peripheral. I assumed it was a migraine, something I have zero experience with. I called her pediatrician's office, but they told me to call her eye Dr, just to be safe.
After talking to the Dr's office, and my husband, about it on the phone, my daughter started telling me about the fact it wasn't the first time she saw the light. She was saying it like I should know what she was talking about. Within an hour, she said she was seeing shapes. It only lasted like 15 seconds. I asked her what she was talking about, and again she started telling me about colorful shapes she sees that dance around, and said it like I should know what she was talking about. I ask if she sees them a lot, but she doesn't see them every day, but more than just a few times. I asked if it is only when she rubs her eyes, but she said no, she sees "falling donuts" when she rubs her eyes.
She isn't a kid that lies, exaggerates, fakes sick, anything like that. The way she said it, so matter of fact and like I should see what she saw, makes me 100% believe her. She drew a picture of what she saw, brightly colored shapes.
I took her to the Dr, and she brought the picture to show them. Her eyes look perfect. The Dr said we need to see the neuro(we had an appt scheduled for May, since it is a busy pediatric neurologist). He said since she had the clear MRI that was great news, but to get her into the neuro.
The next morning(Friday), she started freaking out about a smell. She was saying how awful it was. I sniffed everything, and nothing smelled. It went away for about 15 minutes, then came back again. Then left again. I called her Dr, and they are trying to get her into the Dr before May. She said it could still be migraines, but it could be a type of seizures. My son has febrile seizures, and I have never seen her stiffen and/or jerk like he does. No eye movements, nothing like that.
Today when we got to the grocery store, she said something about how she didn't know we were by train tracks. I asked what she meant, and she said since she heard the train whistle. There wasn't any whistle noise. We weren't by the train tracks at all.
So to sum it up, since this is totally a novel:
1)6 years old with APD
2)Headaches(less frequent now, but still a few times a month at least)
3)Sees white flashing light in peripheral
4)Sees "dancing" colorful shapes that follow no matter which direction she looks
5)Has told us before she heard someone say her name when she was sleeping, then woke up and no one was there.(At least a few time, we figured she just hear my husband or I talking)
6)Smells bad smells when there is nothing
7)No tremors, no zoning out, no stiffening
8)Heard whistling when there was none
Does it sound like it could be seizures? Her pediatrician's office called the neurologist on Friday and are waiting to hear back from them to get her in earlier than May.
TIA!
