Confused and looking for knowledge

[Cherriuz]

I am totally new to this, waiting for my urgent referral to go through while trying to keep going as normal as i can.
But: I am hearing such contrasting stories from friends about what happens. Ive had one say she had the mri and eeg and both came back clear so they shrugged it off and put it down to panic.
ive had one say both of hers came back clear but they still diagnosed it.
im not expecting a diagnosis over the net, just anyone who can share their experience. let me tell you a bit about how i got to this point.

First experience. strangest feeling came over me, cant explain it, not doing anything out of the ordinary, just pottering around my kitchen, next thing i know im half away on the floor, just realising ive wet myself. stay there for a while. according to my other half who came home from work to find me, i was slurring and confused and he couldnt get any sense from me, slept all night and most of the next day

Round 2 (about 6 days later) Top of the stairs. Strange feeling again. before i know where i am im on the bottom of the stairs. again confused and not making any sense. no wetting myself this time! again slept all night and up till 2pm the next afternoon.

we are now 4 days later, and im basically sat around waiting for round 3 now.

what im really stressing about, is the story my mate has told me, about her tests coming back clear and them shrugging it off to panic. how the hell can that be panic? yes, i have a history of panic, which is very much under control with meds, infact, its the best its ever been.

Hoping someone can share their neuroloy experience with me and try and help me get some clarity in my head. ive never been so muddled in my life. onder:

 

[LJ-Bain]

It sounds like they are taking you seriously.
My story is similar to your "mate" but it doesn't mean that will happen to you! The fact that they are acting so quickly is a good sign that you will get some answers quickly too. It's difficult waiting...even after the tests are done MRI, eegs, sleep deprived eegs, video eegs, CT scans...
It doesn't sound like panic when you wet yourself and have gaps in your memory and physically harm yourself falling down stairs.
I hope the medication you have been taking for your panic isn't making it easier for your body to have seizures or lowering your seizure threshold.
You can have clear EEGs and MRIs and they can still be "real" seizures.
I hope that you don't have anymore episodes while you are waiting for your urgent referral.

 

[Nakamova]

:agree:
Positive tests can confirm a diagnosis of epilepsy or some other neurological issue, but negative ones don't necessarily rule it out. Make sure your doctors understand that you reasonably certain that these episodes aren't panic-related. Make sure your doctors listen to you and don't dismiss your symptoms outright. (I'm not saying that they will, but some can be too quick to lump symptoms under a psychological diagnosis.)

Write down everything you can remember about the circumstances leading up to your episodes. There could be a specific trigger in the days or hours leading up to them, or it could be a cumulative effect over time of one or more factors.

Which medication are you on for panic? Some of them can have cardiovascular other side effects that might be playing a role.

 

[Cherriuz]

thank you guys i am on citalopram for depression and off label anxiety. 40mg. have been on it for the best part of a year and this is the best my mental health has been for i would say a good 8 years.

 

[qtowngirl]

I agree too, loss of bladder control and chewing up your tongue (read this in your other post) are not symptoms of panic. The falling, being unconscious, being fuzzy afterward, wetting yourself, the tongue, as well as the funny feeling you get right before it (known as an aura or simple partial seizure as a sort of 'warning' that it may be coming)... all put together describes a tonic clonic (grand mal) seizure to a tee.

Did something happen recently in your life that has brought a considerable amount of stress? Problems at work or in your relationship? Death in the family? Major stress can easily lower your seizure threshold (everyone has one) and bring one or more on.

 

[Cherriuz]

my brothers fiancee has recently been diagnosed with a brain tumour but has come out of surgery alive, we are all sort of in bits to be honest, even though I dont live at home anymore this has put a huge strain on the whole family. we have basically gone to hell and come back again with them for the last couple of months. I had no idea that this could be related. I am such a beginner!
Thanks again. ((hugs))