Hi Can i just ask, Talking about Keppra, has anyone on it's hair gone really curley? Mine did like tight ringlets, all over. Although i am not on Keppra anymore, and my hair is not as curley but it is still very wavey, and my partner says that it may never go straight again. Its been a year since i have been off the drug. So i was just wondering if anyone else has experienced this also.
And talking about the venting, My partner and i are going to my sisters wedding, and my entire family will be there. I hate being around them because they treat me like a baby, always trying to rush around after me, incase i have a funny, as they call it. And when i do have one, they treat me like its a disease, like its going to go away. They tell all their friends that i am not well. But i am well, i just have the same thing as you guys but im still normal, My nan in particular, is so annoying, she tries to push my partner away when she is seeing to me. I mean we know how to deal with it, and my nan tries to hold me like a small child really tight. When anyone tries to smother me i usually come out of a seizure fighting. And i am so afraid that i will hurt her one day. Not meaning to. Because when someone tries to hold me i get more bruises, if they try to hold me still, like so tight around the back and arms so tight they think its going to stop or something. But my partner and her parents just joke around with me and it is good, because it feels like i am just normal, they dont make me feel smothered, we just call it a brain fart (laughing) or a computer reboot. And because my partners family are ex military and ex psychiatric workers, they have dealt with it all before. I mean yeah i am really venting here, my parents and my family were so stupid and ignorant towards epilepsy that they dont even acnowledge what epilepsy is, and when i was a child and i would tell them that i felt funny, (my way of telling them that i didnt know what was happening), they ignored it, they didnt want to hear about what i was saying, they were to wrapped up in their own lives, even though i would go stiff and make noises at 3 months old then go limp and sleep, my mum said i was a good sleeper and thats how i always went to sleep. then when i was close to 2 i would go stiff in my pram and nod my head and make weird noises to the side. they told every one that i was attention seeking. and i would always fall forward for no reason then get up. they say that i stopped doing these things when i was 5. and started again later like laughing uncontrolably for 15minutes then stop. i didnt even know what i was getting told off for. and all this while we had a friend who had LGS epilepsy. And they didnt want to acgnowledge me. pretty ignorant i think, and then when i was 21 i had a massive rolling grand mal which made my dr investigate. there done my venting. i better go to sleep now. night everyone.
samixx
