KarenB
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I have already paid our deductible due to two hospitalizations for my son.
Now, Insurance is paying 100% and I did not even get to know about the cost of the Ketone Test.
Just out of curiosity - Do insurance companies cover the ongoing cost of AEDs or it is completely out of pocket?
Yes, they do cover AEDs but they don't like to cover the name brand ones, just the generic. The problem with the generic AEDs is inconsistency in the primary ingredient (they are allowed to have a 20% difference from the name brand, which can be significant with seizure meds). And a lot of pharmacies switch generic brands frequently, so that screws things up for a lot of patients. Jon's doc wants him on the name brand Zonegran, and our BCBS refuses to cover that, even with a letter of medical necessity. And it costs about $600 a month. Jon's medical expenses when he was having seizures easily reached the $100K mark annually, but once we spent the first 5K, then insurance picked up the rest. Still, that was $5000 out of our pocket each year.