Maybe there are other threads about this, so I hope I'm not starting another one when I should post this on another one.
When I got my diagnosis in June, I found it quite difficult to come to terms with but now especially being back at work.
I was off work from May when I had my first seizure in May, and then I had my second at the beginning of June, until the middle of August.
I thought I was beginning to handle it while I was at home and then when I went back to work I thought I was still doing ok but then in the last few weeks my manager spoke to me about things cos she said I wasn't my normal self and work that would have taken me 10 minutes say, was taking me a lot longer.
Its really really got to me, cos at the beginning I felt like it was out of concern and she wanted to support me and I know she still does, but I kind of get the impression that she thinks I should get my act together and get on with it and I felt a bit critised by it. Now I feel like I'm being watched all of the time.
I'm not sure if she quite understands what its like for me. I'd really like to say something but I don't want to come across as being rude. I don't want to give up my job cos I enjoy it.
I don't want to use it as an excuse and I don't want to rule me but I'm not sure where to go from here.
While I was off work I had some counselling to help and I think it did but now I'm not so sure, but on Tuesday I'm going back to see another counsellor to see if it'll help again.
All I want is for people to see me first and the epilepsy after not the other way around.
Do you have any advice?
Vicky
When I got my diagnosis in June, I found it quite difficult to come to terms with but now especially being back at work.
I was off work from May when I had my first seizure in May, and then I had my second at the beginning of June, until the middle of August.
I thought I was beginning to handle it while I was at home and then when I went back to work I thought I was still doing ok but then in the last few weeks my manager spoke to me about things cos she said I wasn't my normal self and work that would have taken me 10 minutes say, was taking me a lot longer.
Its really really got to me, cos at the beginning I felt like it was out of concern and she wanted to support me and I know she still does, but I kind of get the impression that she thinks I should get my act together and get on with it and I felt a bit critised by it. Now I feel like I'm being watched all of the time.
I'm not sure if she quite understands what its like for me. I'd really like to say something but I don't want to come across as being rude. I don't want to give up my job cos I enjoy it.
I don't want to use it as an excuse and I don't want to rule me but I'm not sure where to go from here.
While I was off work I had some counselling to help and I think it did but now I'm not so sure, but on Tuesday I'm going back to see another counsellor to see if it'll help again.
All I want is for people to see me first and the epilepsy after not the other way around.
Do you have any advice?
Vicky