do you hold your breath after a tonic-clonic?

[CBernieBlack]

Yeah I've taken a big breath of air coming out of an episode. Like I've been swimming for a while and just coming up for air. I wonder if during an episode, that part of the system shuts down during the reboot?

 

[Bernard]

... I wonder if during an episode, that part of the system shuts down during the reboot?

It's possible (warning: pure conjecture on my part) that starving the brain of oxygen is actually part of the reboot process (raising carbon dioxide levels to inhibit overexcited brain activity):

http://www.coping-with-epilepsy.com/forums/tags/carbon dioxide.html

 

[knothing]

According to my wife it is the following.
Scream but more like a very vocal exhale then I don't breathe until the convulsions begin (15-45 seconds). Convulsions go and then I start to snore. I have never been awake when the convulsions end. The sleep is 1-2 minutes then I start to awake and the this takes 20 minutes of in and out of consciousness. I never do struggle to breathe.

 

[MaeDae]

I hold my breath naturally, I knew I did it, but I wasn't contious of it until a year ago.

My doctor said, I need to take deeper breaths. I dont know why
I hold my breath, but I catch myself doing it more now than before. Also, if I hear another person breathing, I tend to take their pattern, i breath in sync with them,,,,no comments, i know, i know, i know, weird stuff,,,,eh?

 

[knothing]

Getting in sync with a breathing pattern is very primal and you would be surprised at how often it occurs without realizing it.

 

[Maisy]

I was told today never had breathing tubes but had oxygen mask apparently i kept pulling it off as was very confused and they had too hold it on as i really needed it

 

[Crash]

Thats a good point Maisy,my 2nd last seizure i did the same in the ambulance,pulling off the oxygen mask.They then took me up to the hospital for ages despite my insisting they drop me off at the bus station.I just wanted home to sleep.

 

[qtowngirl]

was that when your brother came in right at the right time and you were on the couch hun? you went to the hospital after?

 

[Maisy]

Weird day I had it on I had too have glucose gel too and I just kept trying too leave get the bus ended up a week in hospital lol

 

[Crash]

No i was working on a building site so never mentioned epilepsy,of course had a seizure and they phoned the ambulance.I never go to hospital,once or twice when it first started happening.I just always want my bed,then im ok ,sore but ok.

Sorry,no i never went to hospital that time.Bed again.He is pretty clued up if it's a run off the mill tonic or if there is something amiss,he knows what to do.

 

[Autumn Breeze]

I hate the hospital. I never want to go again for seizures either. I was very detailed when I went out with a friend on Friday. I told her that if I didn't start breathing regularly again (and that it can take 2-3 min after the seizure before it's NORMAL again) and if I didn't hit my head NOT to let them call an ambulance or to take me away. If I hurt myself otherwise, (broken bone) that I would decide when I came to.

 

[qtowngirl]

I hate the hospital. I never want to go again for seizures either. I was very detailed when I went out with a friend on Friday. I told her that if I didn't start breathing regularly again (and that it can take 2-3 min after the seizure before it's NORMAL again) and if I didn't hit my head NOT to let them call an ambulance or to take me away. If I hurt myself otherwise, (broken bone) that I would decide when I came to.

:agree:

the thing about the hospital tho, like em or hate em, is if you ever went status that's the only place you'd want/need to be :e:

 

[Autumn Breeze]

Yeah, which is my hesitation. I carry ativan in my pocket, and it dissolves very quickly...but it still takes a while to work it's magic. Status scares the shit out of me.

 

[RobinN]

I 100% about the hospital. I raced to Rebecca's school each time they called, so that the EMTs couldn't take her. I signed my life away, to keep her from going. It is an expensive waste of time.

Rebecca never held her breath. No noticeable signs of distress, other than finding herself on the ground with people surrounding her. Something she told me she hated.

 

[RobinN]

I 100% about the hospital. I raced to Rebecca's school each time they called, so that the EMTs couldn't take her. I signed my life away, to keep her from going. It is an expensive waste of time.

Rebecca never held her breath. No noticeable signs of distress, other than finding herself on the ground with people surrounding her. Something she told me she hated.

 

[Autumn Breeze]

I 100% about the hospital. I raced to Rebecca's school each time they called, so that the EMTs couldn't take her. I signed my life away, to keep her from going. It is an expensive waste of time.

Rebecca never held her breath. No noticeable signs of distress, other than finding herself on the ground with people surrounding her. Something she told me she hated.

Yeah, I hate the look on my husband's face. I keep hoping he'll get used to it, and not look so worried. But then I think about it more and realize he just looks at me that way because he loves me. But, still, ugh.

 

[KarenB]

We've been fortunate -- been able to by-pass ER for seizures except twice (and he got admitted within 2 hours both times) -- one was his first seizure, which totally freaked us out, of course, and the other was when he had a whole lot of tonic-clonics.

Our hospital has an outpatient clinic where we see Jon's pediatrician and all his specialists -- neurologist, endocrinologist, GI doc, nutritionist, etc. So...if his toenails start turning blue, or he's having a seizure cluster, we just go there, and one (or more) of his doctors are bound to be there. When we show up with Jonathan, they don't waste any time -- the nurse always sends us directly to one of his doctors. One time his Neurologist wasn't there, so his Endocrinologist treated and admitted him -- fastest admit I ever saw -- we walked into the hospital at noon -- she walked into the hospital right behind us, and took us directly into her office, where he promptly had a seizure. Within 3 minutes, he was in the treatment room getting oxygen and IV meds, and we were admitted and up on the floor before 1. She did everything so fast, I don't think it hardly interrupted her regular appointment schedule.

 

[knothing]

2 items that I just thought of. Hold your breath is an inaccurate term for me since I expelled all my air at the start and then I just don't breath at all until it ends. The other is I can only imagine the look on peoples faces because I have no memory of it at all. My wife says by the time I actually come to that 'shock and awe' is gone.

 

[petero]

I hold my breath naturally, I knew I did it, but I wasn't contious of it until a year ago.

My doctor said, I need to take deeper breaths. I dont know why
I hold my breath, but I catch myself doing it more now than before. Also, if I hear another person breathing, I tend to take their pattern, i breath in sync with them,,,,no comments, i know, i know, i know, weird stuff,,,,eh?

oh wow - I often do that same mimic thing with the breathing pattern

 

[petero]

I hate the hospital. I never want to go again for seizures either. I was very detailed when I went out with a friend on Friday. I told her that if I didn't start breathing regularly again (and that it can take 2-3 min after the seizure before it's NORMAL again) and if I didn't hit my head NOT to let them call an ambulance or to take me away. If I hurt myself otherwise, (broken bone) that I would decide when I came to.

I hate waking up in the hospital, or anywhere unfamiliar - I'm this same exact way - but NOOOO everyone every fucking time thinks *this* seizure is the one that'll fucking do me in or whatever - fuck that shit
I'd rather die