Does anyone have seizures like this?

[Boozer]

Today I went to the neuro and he basically dismissed me. He spent ten min talking to me and ten min on an exam. During the visit I was not feeling well and was told afterward that I didn't make much sense by the friend of mine that went with me. I have been keeping a journal for about 2 months and have recorded several of my "seizures" I am going to share one with others to get an idea of whether or not they have any idea of what I am going through. I don't really remember much of what I experienced after the "seizure" so I thought it would be a good idea to write it down as I was experiencing it. It is extremely difficult to do this. Anyway let me know what you think please. I want to know if I should continue to pursue the neurologists and get a second opinion or whether I should just give up. Thanks

September 13-14 2013
Right now I am having difficulty reading and writing. I also have a pounding headache over my left eye. My neck is stiff and sore. I have tingling in my left arm and hand as well as my left leg and foot. It's 1:19 am and I just got off the computer after a half an hour at 1:00. Getting dizzy and nauseated. Eyes feel like they are moving from side to side. Tingling in left hand very intense. Headache is alleiviating now at 1:21. Feel disoriented. Sounds are really loud to me. Anxious. Tired a little bit. There is like a roaring in my ears and pressure like I ljust listened to something really loud. Coordination bad. (I am diabetic and wanted to be sure my sugars were ok so I checked them.) Sugars are at 118. Feel very heavy and weak at the same time. Peripheral vision diminished at this time. Headache gone 1:26 am Feel pressure on both temples Left hand and arm stil tingling Left leg fine. Can't write out what I am trying to say all the time. Hard to write. Feel out of it confused a little bit. Stressed. Sluggish I think I am going to lay down I just don't fell right It's like I am coming out and then going back in but mostly coming out of whatever just happend. It's getting easier to write but not spell or think clearly. 1:32 am going to stop now.

The computer is really hard for me so I won't stay on too much longer. judging from all the red lines I see my typing is already affected by the time I have spent on the computer. Let me know what you think everyone I need help understanding what is going on and the doctor just didn't want to hear it today.

Thanks
Erin

 

[MrE]

Today I went to the neuro and he basically dismissed me. He spent ten min talking to me and ten min on an exam. During the visit I was not feeling well and was told afterward that I didn't make much sense by the friend of mine that went with me. I have been keeping a journal for about 2 months and have recorded several of my "seizures" I am going to share one with others to get an idea of whether or not they have any idea of what I am going through. I don't really remember much of what I experienced after the "seizure" so I thought it would be a good idea to write it down as I was experiencing it. It is extremely difficult to do this. Anyway let me know what you think please. I want to know if I should continue to pursue the neurologists and get a second opinion or whether I should just give up. Thanks

September 13-14 2013
Right now I am having difficulty reading and writing. I also have a pounding headache over my left eye. My neck is stiff and sore. I have tingling in my left arm and hand as well as my left leg and foot. It's 1:19 am and I just got off the computer after a half an hour at 1:00. Getting dizzy and nauseated. Eyes feel like they are moving from side to side. Tingling in left hand very intense. Headache is alleiviating now at 1:21. Feel disoriented. Sounds are really loud to me. Anxious. Tired a little bit. There is like a roaring in my ears and pressure like I ljust listened to something really loud. Coordination bad. (I am diabetic and wanted to be sure my sugars were ok so I checked them.) Sugars are at 118. Feel very heavy and weak at the same time. Peripheral vision diminished at this time. Headache gone 1:26 am Feel pressure on both temples Left hand and arm stil tingling Left leg fine. Can't write out what I am trying to say all the time. Hard to write. Feel out of it confused a little bit. Stressed. Sluggish I think I am going to lay down I just don't fell right It's like I am coming out and then going back in but mostly coming out of whatever just happend. It's getting easier to write but not spell or think clearly. 1:32 am going to stop now.

The computer is really hard for me so I won't stay on too much longer. judging from all the red lines I see my typing is already affected by the time I have spent on the computer. Let me know what you think everyone I need help understanding what is going on and the doctor just didn't want to hear it today.

Thanks
Erin

First of all your doctor is a piece of crap...GET A NEW ONE ASAP!!! If any doctor treated me that way I'd choke them silly in an instant...but anyway I can relate to what you are going through...I can say I experience most of this if not all of it...maybe not to the same degree but to a different one...fluctuations and all...all you can really do is savor the little breaks you get in between...and of course take it easy...I "pray" for you to feel better (you know what I mean)

 

[Boozer]

If you don't mind me asking, what kind of seizures have you been diagnosed with and how did they "confirm" it? So far I have had a mri negative eeg normal and cat scan small hypodensity on the left frontal lobe. I am just wondering what I may need to do to get a diagnosis. The quack wanted me to go straight to Pittsburgh for a video eeg for observation so they could see me having one. Even though I was in the midst of one in his office. According to my friend who went with me I made hardly any sense and couldn't remember anything he said to me right after he said it and he couldn't tell. To tell you the truth I think he may have thought I had been drinking before my appointment. The neuro exam was like a sobrity test and I couldn't even touch my nose from his finger to my nose or walk heel toe either. I don't know I am very frustrated with the whole thing right now. I was so out of it at the doctor office I barely remember anything I have to keep asking my friend what was said and what wasn't said. But I definitely don't want to see a doctor that couldn't see what was going on right in front of his face. If he couldn't recognize that I was having trouble then how is he supposed to read a eeg or some other type of testing? Thank you
Erin

 

[MrE]

If you don't mind me asking, what kind of seizures have you been diagnosed with and how did they "confirm" it? So far I have had a mri negative eeg normal and cat scan small hypodensity on the left frontal lobe. I am just wondering what I may need to do to get a diagnosis. The quack wanted me to go straight to Pittsburgh for a video eeg for observation so they could see me having one. Even though I was in the midst of one in his office. According to my friend who went with me I made hardly any sense and couldn't remember anything he said to me right after he said it and he couldn't tell. To tell you the truth I think he may have thought I had been drinking before my appointment. The neuro exam was like a sobrity test and I couldn't even touch my nose from his finger to my nose or walk heel toe either. I don't know I am very frustrated with the whole thing right now. I was so out of it at the doctor office I barely remember anything I have to keep asking my friend what was said and what wasn't said. But I definitely don't want to see a doctor that couldn't see what was going on right in front of his face. If he couldn't recognize that I was having trouble then how is he supposed to read a eeg or some other type of testing? Thank you
Erin

Apparently I have Juvenile Myoclonic Epilepsy with Partial Complex Symptoms (whatever that means)...in other words there was never any "real" confirmation of what I "have"...just speculation...but hey...the Depakote (which I've been taking for about 15 years now) seems to be controlling the seizures for the most part so I'm not being too picky about what I have but more so thankful that I am not having full blown fall on the ground and shake violently in a fetal position type seizures...however I do have a golf ball sized arachnoid cyst in my brain...right temporal lobe to be exact...but that was never officially "linked" to the cause of my seizures but just dismissed as "coincidence"...well that pretty much sums it up for me for now lol

All I can say is that I hope and pray that you have better luck with your doctors/situation...and that well like I said earlier...that you feel better...okay well time to get to bed now...feeling sick again (dizzy and disoriented)...take care (ttyl)

 

[Boozer]

Thanks very much. I thought they may be partials of some sort. I have bad news. The doctor I saw is the only one in the area I can see with my insurance so I have to make due. He was however better today when I called and explained that I was experiencing symptoms during the visit. They have scheduled me for a ambulatory eeg as I am unable to get to Pittsburgh for video eeg. Wish me luck. Hopefully they find out what is going on. I am so sick of being sick and tired. Today has been a better day for me though hopefully I have a break for a little while and you're right I do make the best of feeling good no matter how short or long it is. I have been on depakote before and it really didn't help much that I can remember but that was years ago. Wish me luck. Thanks again.
Erin

 

[Endless]

Good luck, Erin!

There are a lot of diseases that have symptoms of seizures, or that look very much like seizures. So a good neurologist is important. It took 4 years and 5 neurologists to figure out intracranial hypertension has been causing my seizures, and the treatment isn't anti-seizure meds, it's to get the fluid pressure down so it isn't squeezing my brain. I know it's hard when the doctors make you jump through endless hoops, but it's important to get the correct diagnosis! They don't want to put you on big, bad brain drugs without making sure it's the right thing to do. Though, some doctors make a diagnosis on case history, and try the drugs to see if they help.

 

[valeriedl]

I live in PA and my neuro is an hour away in Pittsburgh at UPMC. It's where I started out when I had my first seizure. He's the second nuero that I've had and the only reason I switched is because my first moved out of the area. There is one closer to where I live but really don't know much about him because I've never been there.

I really love my neuro. He seems to understand what's going on and if something needs changed (like meds) or done (like testing) he suggests having it done. And pretty much the things he does work out in a good way.

Today I went to the neuro and he basically dismissed me. He spent ten min talking to me and ten min on an exam. During the visit I was not feeling well and was told afterward that I didn't make much sense by the friend of mine that went with me. I have been keeping a journal for about 2 months and have recorded several of my "seizures" I am going to share one with others to get an idea of whether or not they have any idea of what I am going through. I don't really remember much of what I experienced after the "seizure" so I thought it would be a good idea to write it down as I was experiencing it. It is extremely difficult to do this. Anyway let me know what you think please. I want to know if I should continue to pursue the neurologists and get a second opinion or whether I should just give up. Thanks

It is a very good idea to keep a record of what's happening. This way you'll beable to tell the dr how often and what they are like. This should make it easier for them to understand.

A good bit of these things happen during and after a seizure with me. I don't make sense and I'm pretty confused about what's going on after it. When I start to come out of one it may take me a while to realize what's going on so I don't remember to much about it, what happened before and after.

Right now I am having difficulty reading and writing. I also have a pounding headache over my left eye. My neck is stiff and sore. I have tingling in my left arm and hand as well as my left leg and foot. It's 1:19 am and I just got off the computer after a half an hour at 1:00. Getting dizzy and nauseated. Eyes feel like they are moving from side to side. Tingling in left hand very intense. Headache is alleiviating now at 1:21. Feel disoriented. Sounds are really loud to me. Anxious. Tired a little bit. There is like a roaring in my ears and pressure like I ljust listened to something really loud. Coordination bad. (I am diabetic and wanted to be sure my sugars were ok so I checked them.) Sugars are at 118. Feel very heavy and weak at the same time. Peripheral vision diminished at this time. Headache gone 1:26 am Feel pressure on both temples Left hand and arm stil tingling Left leg fine. Can't write out what I am trying to say all the time. Hard to write. Feel out of it confused a little bit. Stressed. Sluggish I think I am going to lay down I just don't fell right It's like I am coming out and then going back in but mostly coming out of whatever just happend. It's getting easier to write but not spell or think clearly. 1:32 am going to stop now.

Some of these things happen to me after a seizure.

I'll have a horrible headache that will last for hours. I lay with a bag of ice over forehead and try to block out as much light and sound as I can. Usually light and noise will start to make it throb.

Most of the time I just lay down and fall asleep but the headache has to subside some before I can do that.

If you're confused and have trouble doing things it's possible that you could still be having the seizure and aren't completely out of it yet. I know I have these problems until the seizures over.

I don't get the tingling feeling but I know there are a good bit of people that do.

 

[Boozer]

Thanks guys! All I know from the report that the doc sent me is that he doesn't think they are complex partial seizures. I don't think he really knows what they are. Maybe the ambulatory eeg will show what is going on or maybe there are other options in my area to explore. I am starting to wonder if it is just my migraines are so severe they are causing more symptoms. I told the doc about the migraines but we didn't really explore it much. I just hope they figure it out and there is treatment for it.