I am pretty new to the site, having posted my story in the Foyer a month or so ago. Basically, had my first ever seizure back in November 2012, when as far as we can tell, I had two tonic clonics a few minutes apart. I haven't had another since
Then in December I started having strange nocturnal episodes.
I have been trying to keep a log of what happens and my husband has also been trying to observe them and check how alert/responsive I am etc. I had 23 nights where I had these episodes between mid December and mid March, but since then they have tailed off to be once or twice a fortnight at most, except the week before my period, when they seem to increase slightly.
They always occur between 4.00 am and 6.00 am and start with me waking up feeling really restless - a bit like restless legs but all over and I suddenly feel very hot. Then almost immediately I get a horrible dready feeling, tingling/buzzing that kind of rises up through my body from my feet, stomach pain and nausea, then really deep, painful incessant yawning that is like a compunction that I can't control and is accompanied with excessive eye watering. (The yawning is not like typical tiredness yawning, it's kind of a whole body yawn that really hurts my lungs and my jaw, with each yawn going on for longer than a normal yawn and then more and more of them back-to-back with no time to breathe in between). This then leads to burning, painful pins and needle type feelings in my left foot/calf and hand/arm which seems to creep up my limb and is really painful, feeling like when you have burned yourself on the oven shelf but all over my hand/arm and foot/calf.
I have had a few longer episodes that reach a point where it feels like my eyes are compulsively blinking, but quite slowly though - not flickering - although this only happens when the 'event' goes on for longer.
I tend to have roughly 3 of these in a row, followed by 3-4 smaller, shorter/quicker ones and am then totally exhausted, often sleeping until lunch time without waking if it's possible (not always possible as a busy mum of 3). The whole thing, usually lasts no longer than 15 minutes from the first longer episode to the end of the last mini-episode.
I feel like I am aware when this is happening, but my husband tells me that he can only get the odd slurry 'yes', 'no' or incomprehensible mumble out of me and apparently last night I just seemed to mumble yes whenever he said anything - although when I am between the smaller episodes I am confused but able to respond to him a bit better.
Does anyone recognise anything about my nocturnal episodes from their own experiences? I can't find much about yawning and epilepsy on the net, so am starting to wonder if this is a sleep - rather than a seizure - disorder.
Then in December I started having strange nocturnal episodes.
I have been trying to keep a log of what happens and my husband has also been trying to observe them and check how alert/responsive I am etc. I had 23 nights where I had these episodes between mid December and mid March, but since then they have tailed off to be once or twice a fortnight at most, except the week before my period, when they seem to increase slightly.
They always occur between 4.00 am and 6.00 am and start with me waking up feeling really restless - a bit like restless legs but all over and I suddenly feel very hot. Then almost immediately I get a horrible dready feeling, tingling/buzzing that kind of rises up through my body from my feet, stomach pain and nausea, then really deep, painful incessant yawning that is like a compunction that I can't control and is accompanied with excessive eye watering. (The yawning is not like typical tiredness yawning, it's kind of a whole body yawn that really hurts my lungs and my jaw, with each yawn going on for longer than a normal yawn and then more and more of them back-to-back with no time to breathe in between). This then leads to burning, painful pins and needle type feelings in my left foot/calf and hand/arm which seems to creep up my limb and is really painful, feeling like when you have burned yourself on the oven shelf but all over my hand/arm and foot/calf.
I have had a few longer episodes that reach a point where it feels like my eyes are compulsively blinking, but quite slowly though - not flickering - although this only happens when the 'event' goes on for longer.
I tend to have roughly 3 of these in a row, followed by 3-4 smaller, shorter/quicker ones and am then totally exhausted, often sleeping until lunch time without waking if it's possible (not always possible as a busy mum of 3). The whole thing, usually lasts no longer than 15 minutes from the first longer episode to the end of the last mini-episode.
I feel like I am aware when this is happening, but my husband tells me that he can only get the odd slurry 'yes', 'no' or incomprehensible mumble out of me and apparently last night I just seemed to mumble yes whenever he said anything - although when I am between the smaller episodes I am confused but able to respond to him a bit better.
Does anyone recognise anything about my nocturnal episodes from their own experiences? I can't find much about yawning and epilepsy on the net, so am starting to wonder if this is a sleep - rather than a seizure - disorder.