Does your seizures hurt?

[Janus]

I relate so much to this thread. It is hard to explain, for me. My memory is so bad that i often have no recollection of the feelings that just happened when i seized. I do know that right after i feel like i just got ran over by a train.

 

[N Sperlo]

Simple-partials and complex-partials, no except for kind of soar muscles if I have been kicking and punching all night, but from a T/C, like Janus said, it will feel like I've been run over by a train.

 

[Janellie8]

but boy does that 30 seconds feel like a life time....peace and love x x x

averz21,

I completely understand you! "Hardcore pins and needles" is exactly what I feel. And when I am having the seizure, mine only last about 5-10 seconds, and in those seconds it definatly feels like forever! What does your auras feel like? I also have those as well. I feel a tingly sensation in my inner thighs and knees...sometimes it can be painful and others just a tingly feeling.

Hugs,
Janellie

 

[Janellie8]

N Sperlo and Janus,

I have only had two T/C seizures in my life. These are terrible. I can agree it does feel like getting hit by a train. My body is so sore and I don't want to move or do anything, all I want to do is sleep!

Hugs,
Janellie

 

[C0urt]

some hurt worse than others, I try to keep myself in shape so I don't stay sore long. but yes they can tingle a little.

 

[averz21]

averz21,

I completely understand you! "Hardcore pins and needles" is exactly what I feel. And when I am having the seizure, mine only last about 5-10 seconds, and in those seconds it definatly feels like forever! What does your auras feel like? I also have those as well. I feel a tingly sensation in my inner thighs and knees...sometimes it can be painful and others just a tingly feeling.

Hugs,
Janellie

Janellie,
The aura i have is strange, as i have been 10 months without a seizure its not exactly fresh in the memory but i would wake up and my head would just be dizzy, my eyes would feel like there rolling to the back of my head sometimes. i have been able to get out of bed and actually walk off the seizure....its like a battle to escape the seizure everytime for me so when i cant, the feeling of being defeated is in my head whilst going through the physical pain! its horrible. For the first time since being diagnosed 9 years ago i feel like im no longer scared of my epliepsy, I actually believe i am not an epileptic anymore.....I have not seen my neurologist for about a year coz he is rather useless and has cancelled a few appointment and i havent been able to make the rearranged ones but im looking forward to my next appointment and the thought of gradually reducing my meds.

 

[Janellie8]

I actually believe i am not an epileptic anymore.....

averz21,

I wish that one day I can believe that I am not an epileptic anymore! That would be just amazing. I too try and fight my seizures, sometimes it works and other times I just let it happen because there is no use of me fighting. As for the neurologists, I guess mine were not of much help- mostly because when I was younger I would be so embarrassed and not tell them the truth about my epilepsy. But I have an appointment tomorrow with a new neurologist and I am really excited actually! I am not to scared of my seizures, but twice I have had tonic colonics (I think that's what they are called) and that lasted for about maybe 2 minutes...that was a terrible experience. But I am learning to keep the stress down! Because that can be a major issue. Best of luck to you!

Hugs,
Janellie

 

[petero]

totally
some of the worst also is waking up to the reactions of what must have been traumatic to see - but at that point all I want is to sleep (but once found the logic behind not continuing to sleep on the highway's frontage road sidewalk - lol)
sometimes I even (maybe usually) appreciate having cuts on my knees, knuckles, a black eye or whatever, just because it makes my thinking easier because I have a physical reference point (i.e. telling myself "this type of thinking is ok - I just recently had a seizure - see? here are my knuckles to prove it") and otherwise just the mental process might drive me crazy.
the physical pain is usually nothing compared to the mental stress of realigning thought ions or whatever it is.
This can take me up to several days to un-mangle, and I'm still not really sure if it ever really goes away.
The brain is built one thought at a time, and then if that mush is cleaved by a seizure I'm not really sure "it" ever does or can heal - or if healing is just an increase in coping skills and in neuroplasticity.
I don't think we ever think the same way again after having seizures, and that's a lot harder than having my knuckle rubbed off, or whatever, but luckily with every moment we're blessed with never thinking the same way ever again either, so we're used to it, but we need to do what we can to keep up the neuroplasticity to keep thoughts and our thinking ability plastic.

 

[petero]

I have grand mal seizures, so I never am conscience for my seizures, but the after affects are killer. my whole body aches and i always have a major headache

ditto
my groin/waist hurts a lot afterward
pecs, between my scapula...
the "weightlessness" and thought reprocessing stuff I experience is really gross

 

[petero]

re: "not being epileptic anymore"
I recall hearing somewhere (I think it was during an ictal period which makes the recollection a little strange) that seizures are actually like "brain tattoos", and once you've had a seizure there's not really a way to "no longer have epilepsy" unless you get an "-ectomy". Otherwise, all drugs do is work preventatively.
I won't recommend changing prescriptions/doses without your doctor's recommendation.