EEG Neurofeedback

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My insurance company said it won't cover neurofeedback because it is experimental for Epilepsy. We need more research so it becomes a standard treatment!
 
Hi Bernard - I'm interested in learning more about neurofeedback. I don't need any more information (you've offered a lot to think about, above). But I do have some questions - in your experience...

Did you notice any personality changes?
Did insurance cover any of the expenses?
Just curious - if you don't feel comfortable, I understand.

Thanks, D in Dallas
 
Personality changes? No, not really. Stacy was definitely functioning better overall (better memory recall, clearer thinking, etc.) and I suppose this lead to her being a bit happier overall, but I wouldn't say that was a personality change.

Insurance did not help us cover any expenses. We paid for everything out of our own pocket(s). I have heard feedback from others though that their insurance has helped cover some or all of their expenses, so I guess you never know until you try.
 
Bernard - ok - I still have a lot to learn. I think maybe the personality changes I was reading about had to do with some meds? That it can make someone really slow down, but not everyone. Not sure...anyway, thanks again for all the great info! I can't tell you how much it has helped us. D
 
We just got our QEEG results from a neurofeedback clinician. Our son had a lot of high beta waves in 2-3 area of the brain and the clinician recommended uptraining theta waves. My concern is I thought from reading literature that increasing theta waves can cause seizures and that normally, to decrease seizures, the protocol was to decrease theta and increase SMR (low beta) waves. Any info/opinion on this is greatly appreciated. Also, sharing of protocol that have worked is also appreciated.

thanx in advance.
 
The first protocol ever developed for seizures focused on SMR normalization. Lately newer protocols focus on QEEG normalization.
 
Bernard said:
The first protocol ever developed for seizures focused on SMR normalization. Lately newer protocols focus on QEEG normalization.
Click to expand...

Thank you for your response Bernard :)

May I ask what protocol your wife was using? Was she working on SMR normalization or QEEG normalization?

thanx
 
IIRC, She used the SMR protocol the first time.
 
It seems to me that SMR is tried and tested. I am a little afraid of trying the QEEG normalization. I wonder if one works better than the other....?
 
Is there a cut off point, a point you reach where the nerofeedback stops bieng productive? Maybe even cause seizure activity?
 
Neurofeedback is basically an exercise system for the brain. Much like with muscles, I'm sure there is a point of diminishing returns - where increased training (with the same protocol) yields little to no benefit.

As far as causing seizure activity - that should only occur if the training was encouraging abnormal brain activity. It should not happen with a competent NFB practitioner.
 
:)

I occassionally get feedback either through the forum or directly via email from people who tried neurofeedback after reading one of my posts somewhere. The success stories (even if partial) mean more to me than any medal ever could.
 
My daughter, Rebecca, is one of his success stories.

If it had not been for Bernard, I would never have learned about neurofeedback. It most definitely was the beginning of Rebecca's road to recovery. She is now 7 months seizure free. Not the only therapy, but a significant part of it.
 
I think neurofeedback is an excellent idea and I do think insurance companies should be pressured to carry it. I'd like to use neurofeedback not only to control seizures in the nick of time before they become full-blown - but also to achieve altered states of consciousness. I suppose certain kinds of meditation can put one in a state less likely for the emergence of seizures.

Has anyone ever figured out how to stop an impending seizure by will power alone?

I'm curious about those New Age gadgets they sell on the net - neurofeedback devices. Are they any good? Has anyone ever tried them?
 
Sue Ford sent me an email highlighting a small study she was involved in:

http://www.eegcentreforneurofeedback.com/Epilepsy-Comorbidities.pdf

She said:
Wanted to share this poster written by Stella Legarda, MD, Ped Neurologist of her observations with her patients success with NF under my care using Othmer approach. She presented this information at a meeting of neurologists last month in the U.S. After she witnessed what NF could do (even with her most severely impaired patients) she went to CA, took the Othmer Training and is now doing more research on NF at Georgetown University. When she was on staff at Spartanburg Regional Hospital in South Carolina she developed an Epilepsy Fund for her patients who were low income. That fund paid for these children's QEEG's performed by James R. Evans, PhD and got them started on their NF journey. My hopes are that in the future we might have funding for low income severely disabled children who need NF.
Click to expand...

:woot:
 
I am thinking of having Neurofeedback therapy in Austalia but can not find much here are you still seisure free?
 
Yes, It seems that the Nerofeedback and my meds keep me seizure free. I had a couple of set backs last year that were caused by med changes but I am 141 days seizure free again. I havent recived nerofeedback treatments for 6 months.
 
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