Epilepsy and Childhood - GRAPHIC PHOTOS!

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

brain

Account Closed
Inactive
Messages
3,450
Reaction score
2
Points
0
Here's some various photos of me
in 60s and 70s and you can see it

1966b.jpg


You can see it on my left side of my head
and arm and hand; Not sure if this was a
Drop Attack (Atonic).

dec1969.jpg


Not Sure if this was a Grand Mal (Tonic Clonic),
with Todd's Paralysis, but I was not able to
walk for several days, but you can easily see
my left side of my head, my right arm not able
to bend, my left arm is distorted, and my legs
are buckling and I appear to struggle to walk
because I am struggling to walk. I also appear
confused, because I am confused.


jan1971.jpg


Nocturnal Seizure - January 1971 taken
at my sister's friend's house to celebrate
her birthday there. My parents kept the
furniture very close to the bed to keep me
IN BED. This is what I meant when I felt
like being beat up with baseball bats. This
is the best closeup shot of me being banged
up.


My parents did NOT take very many close
up shots of me at all. I was very deformed
with birth defects. See below, a neighbor
took this one.

1968b.jpg



ALL of the photos above are SLIDES.
My father converted the slides to the
VHS, I had to use the Television and
Digital Camera to shoot off from the TV
to Camera.

This is me a few months after when I
was adopted:

mar1963.jpg


 
Thank you for sharing those, (((((Brainy))))). I'l be many of the older members with childhood epilepsy can relate to all the injuries. Did anyone ever think your parents were abusing you and call protective services?

 
Birdy - Good Question!

Unfortunately no, because it's still
on-going, same old, same old....
the epileptic seizures that is.

With the area being rural, and no one
really thought much of anything out
of the ordinary, for example: Drop
Attacks. They merely just deemed me
as a "klutz" or "clumsy", even though
I did not get up right away. They knew
about Shands Hospital's report and the
nerve damage, audiological, neurological,
dysarthric (speech), etc.

I never was treated for it, until after I
became married and my old retired
Pediatrician (who lived around the corner)
gave me the business card of a Neurologist
for me to see, but before I could ever get
to it; I ended up in the ER with a Grand
Mal in my sleep to which my "new" husband
took me there in my car, and I had another
one in the ER again. I just can't remember
what they gave me back then, and the
referral to the Neurologist was the same
one that my retired Pediatrician gave me.

Back in my days growing up, the Hospital
to go to was Shands, which was a very long
drive and hours away and it was the only
one in this entire State to for anyone to
go to.

My area really didn't become "Metro" until
around mid-80s and was bouncing around,
then became steady by mid-90s, and now
we're in a decline with so many people
departing and Companies shutting down
and relocating.

It used to be extremely difficult to find a
home in this area; but now you have a wide
range of selection - for CHEAP!
 
(((brain))) What you made it through.... Amazing! Your strength and GOODNESS are awe inspiring.
 
A cutey!....

I wish I could find some that showed the effects of the drugs!....I ballooned up to 163lbs (at 5' 4") in 6th grade on Dilantin(I think)...anyway, the pictures showed a kid that looked like he was fixing to have a heart attack!
Luckily, I got off that drug AND hit a growth spurt in the following summer--- 128lbs (at 5' 10") ...the girls thought I was HOT!
:rock:
 
Those pictures are incredible! What you had to endure, my goodness! Thank you for sharing.
 
Back
Top Bottom