Our providers have been talking to us about admitting our 6 year old to the epilepsy unit for 3 days. They would probably pull her meds the second day after having a night to try to see if she is having nighttime seizures on her meds. They basically just said "it could give us more information to help treat her more effectively" which sounds good but I have heard that before about other testing that turned out to be pretty arduous for us and not very helpful in the end. What has been your experience?
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It is not easy to decide on a long-term video EEG, esp. where a child is concerned. Some things that may be worth considering in making the decision:
1. How often her seizures occur. If they occur less frequently than every 3 days, it is possible that the timing of the hospital stay will be such that a seizure will not occur;
2. Half-life of her medication (eg. the half-life of one of mine is 105 hours, so a 3-day video EEG would not be long enough in my case because not enough of the medication would be out of my system).
3. What have standard EEGs shown, and if abnormal why is this not sufficient information to go on (a question for the doctor).
For me the VEEG was worth it, because all my standard EEGs were normal. During my hospital long-term video EEG my EEG was still normal but the video showed clear nocturnal seizure activity.