estrogen replacement

[nmgma00]

Sometimes I feel like I should have a blog just so you wonderful people don't have to experience the daytona 500 that goes on in my brain, but I dont soooooooo.. My angela is on estrogen replacement due to her chromosmal issues--that being turner syndrome. I can't help but wonder if her going through what little puberty she can on her own on top of estrogen medication has lowered her threshold for seizures? She also is on growth hormone due to Turners as well. Then she takes Concerta for ADD and Luvox for OCD. She has cognitive delays, especially in math, which is normal for these girls but I just think, in some way that is unknown to physicians, that it is all tied together. I've had an ER doctor tell me he has heard of a correlation between seizures and turner syndrome. But when you get a positive EEG I guess that is pretty self explanatory. Our endocrinologist at Children's Hospital said there is NO correlation between the two and actually had never had an epileptic Turner girl and had to confer with the neurologist and angela's cardiologist. It's all so complicated it makes my brain hurt!! I don't know, maybe I think too much.

I tried to add a link for turner syndrome but I haven't been around long enough i guess lol who in the world would post a link to a site that would induce seizures in the photosensitive?!

 

[jyearta]

Sometimes I feel like I should have a blog just so you wonderful people don't have to experience the daytona 500 that goes on in my brain, but I dont soooooooo.. My angela is on estrogen replacement due to her chromosmal issues--that being turner syndrome. I can't help but wonder if her going through what little puberty she can on her own on top of estrogen medication has lowered her threshold for seizures?!

Yes estrogen can cause seizures, for me anyway.
If I take Vitamins over the counter, Antibo. I will have a seizures.

I'm sorry she is going through all this.

 

[elizzza811]

Never heard of Turner's Syndrome, but I do have the OCD. Quite a few articles out there linking OCD and temporal lobe epilepsy. Here's one...

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3181953/

 

[nmgma00]

Turner Syndrome only affects girls. Instead of the usual XX chromosomes, they are X0, or a partial deletion of the second X chromosome. Short stature, ovarian failure, cognitive delays in some, webbed neck, heart, kidney, ear problems....it's quite encompassing. The OCD and epilepsy are just extras that came with

 

[Nakamova]

Here's more info about Turner's: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001417/
http://en.wikipedia.org/wiki/Turner_syndrome

nmgma00, you can always spell out a link, or ask a moderator to check it out and post it. Believe it or not, we have had people do the horrible thing and post links to triggering videos. Some trolls have hit CWE in the past, that's why there's the delay before you can post a link...

High estrogen levels and low progesterone levels can definitely be triggering. That's what catamenial epilepsy is all about. And despite what your daughter's endocrinologist says, there can be a link between Turner's and seizures. See http://www.seizure-journal.com/article/S1059-1311(06)00218-4/abstract and http://www.ncbi.nlm.nih.gov/pubmed/2124799

 

[nmgma00]

Great articles..thanks!! This topic is for surely on my list of questions for the neurologist and wow!! i had no idea catamenial epilepsy was out there...thank you as always for your information
And that is horrible that people who do that on purpose...there is a special place for those kind of people