KarenB
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Hi Janus -- Coq10 is part of Jon's vitamin/supplement regime -- he uses the Nutrivene D formula, which has lots of goodies that seem to be helpful for epilepsy, as well as good immune system (when we cut back on it once, his seizures got worse). I also recently started taking it for myself, as my blood sugar is higher than I'd like (altho not in diabetic range)
I'm wondering about a connection between your high blood sugar and seizures? If, perhaps, fluctuations in blood sugar (either high or low) could be triggering seizures? (this was certainly the case for Jon prior to initiating the Keto diet -- also temporal lobe seizures). You mention being a vegetarian, but wondering about your carbs, and if the ones you consume are high fiber (and thus more slowly absorbed, which is better for the blood sugar)?
When Jon was at the height of his gut issues and horrible photosensitive seizures, we found that a combo of the Ketogenic diet (which he was already on) and the Select Carbohydrate diet to be helpful. The Select Carb diet (which was developed to combat Colitis & Crohns and seizures related to it) eliminates most grains, but legumes are permitted. Also sugar. They explain the science behind the "allowed" and "forbidden" and "ok when you're not having a flare-up" foods on their website.
http://www.breakingtheviciouscycle.info/
It seems that the diets most effective in controlling seizures (Ketogenic, Modified Atkins, Specific Carb, LGIT) all reduce or eliminate sugar and grains, and promote a low glycemic index -- which is good for both metabolic issues as well as gut issues (esp. small bowel)
I'm wondering about a connection between your high blood sugar and seizures? If, perhaps, fluctuations in blood sugar (either high or low) could be triggering seizures? (this was certainly the case for Jon prior to initiating the Keto diet -- also temporal lobe seizures). You mention being a vegetarian, but wondering about your carbs, and if the ones you consume are high fiber (and thus more slowly absorbed, which is better for the blood sugar)?
When Jon was at the height of his gut issues and horrible photosensitive seizures, we found that a combo of the Ketogenic diet (which he was already on) and the Select Carbohydrate diet to be helpful. The Select Carb diet (which was developed to combat Colitis & Crohns and seizures related to it) eliminates most grains, but legumes are permitted. Also sugar. They explain the science behind the "allowed" and "forbidden" and "ok when you're not having a flare-up" foods on their website.
http://www.breakingtheviciouscycle.info/
It seems that the diets most effective in controlling seizures (Ketogenic, Modified Atkins, Specific Carb, LGIT) all reduce or eliminate sugar and grains, and promote a low glycemic index -- which is good for both metabolic issues as well as gut issues (esp. small bowel)