your very lucky to have someone so close to you who understands what your going through!My twin sister and I have complex partial seizures and also have blindness/low-vision and hearing impairment. Sometimes it's hard to tell if we just didn't hear something or are off in the "Land of E" or in a seizure rather. My twin and I help each other out and our best friends help out too when we are with them. Our Parents understand about our disabilities but I don't like for them to have to "Care" for us when we are now 25 years old. I feel I would rather deal with them on my own then to put burdens on Mom. She knows when something is happening but my seizures don't require a lot of help unless I start to wander around. As with all of our disabilities or conditions there are certin ways to deal with them and after so many years of having them, everyone kinda just deals with them as they come. I would like my Mom to know more about CP but just knowing the basics is better than not knowing anything at all. I've had seizures since age 6 and blindness and hearing impairment from age 1 due to prematurity and many medical problems as a result of being born at 1 pound.
Everyone take care and be safe..
My family was the same way when it came to me and my sons. By that time, my ex had brought me to Texas, and I was alone, since we had just arrived, and I hadn't talked to anyone let alone made friends.Most of the ex's family try to be understanding but worry about Little one's safety and often make me feel incompetent or useless when it come to my daughter.
Unfortunately, not enough people want to learn and just "roll with it". It is easier to be so unrealistically judgmental and close-minded. I remember seeing a co-worker for the first time. She was wearing a burka. She had been wearing one for years, and had been working in another department, so I didn't see her till just after 911.A little education would have gone a long way, if they had wanted to learn. Those who did are great with the seizures and just "roll with it".