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bbbecki78

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Justin is ten months and has been diagnosed with Epilepsy since 4 mos old. He is also globally delayed. I think I am having a really hard time lately because he is approaching 1 year old and there are so many things he is not able to do, that I was so hoping he would be. Even things that were his goals with the physical therapist. For example, sitting up, crawling and smiling. He does smile sometimes, but not very much. He has made some progress, such as he makes a lot noise :) for the first five months, he did not make any. He kicks his legs a lot, and his tracking has improved greatly. The neurologists have not been able to find out what is causing the Epilepsy and delays and I know they are often not able too. Thanks for listening to me vent. I just pray that some day, Justin is able to do those things. It is heart breaking, I love him so much.
 
Hi Becki,

So sorry your hear about your little boy. I can only imagine how hard it must be..when you want to make it all better, but can't. It sounds like he is making some improvements..that is a good thing. Our family group is just wonderful and so supportive. I know you will find it helpful and just a great place to unload and really informative. There are others parents with little children also. I will keep Justin and you in my prayers. Welcome to our group!!

Michelle
 
Becki,
You will find so much support here. I can't even tell you. I was finally diagnosed in the fall after yrs. of my seizures being misdiagnosed. My Mom also died in April and I can't tell you how wonderful these folks have been throughout both of these times. It is like one big family and even fun at times as well. We all sort of help each other and are just here for one another. I am sure you will hear from lots of other people. Hang in there and we are all here for you!

Michelle
 
Becki,
When you have a child your heart and soul is in their every breath. I have faced a very different challenge with my child than yours -but I know the love a parent feels for a child that is struggling for a simple task that others master easily. What my older children ran through with out stopping - my youngest crawls on hands and knees in cut glass to acomplish. The best advice we ever got was from a doctor who told us never be his teachers or task masters - just be his protector and his soft place to land. That was good advice. You will be there for HIM and that is the most important role of all time. This I know for true. Let us know how you are!
 
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