Hello everyone I am having a few issues with my sons school system and how they are handling his epilepsy. If anyone has had the same problems or ideas on how to make it better I would appreciate it.
1) They refuse to allow him to have his Diastat at the school UNTIL he has had a dose. My concern is this- he spends 8 hours a day with these people I feel like the likely hood of him having one at school is high. I work VERY close to his school so I could make it in an emergency. But what if I am not at work?
2) They were REFUSING to allow him to participate in the normal PE, while the other kids were running laps he was told to walk. While the other kids were playing games he was told to sit. This was AFTER getting a letter from his Neuro dr releasing him to do as he pleases in PE.
3) He has been diagnosed for 4 weeks. 7 days of those four weeks he has been sent home for possible "signs" of a seizure. Oh and one of those weeks was spring break so technically he has only attended school 3 weeks. They are so afraid of him having a seizure on their watch.
I contacted the local Epilpesy foundation and they are going to see what they can do to help with the Diastat......But IM SO FRUSTRATED!!!!!!!!
Any Suggestions???
1) They refuse to allow him to have his Diastat at the school UNTIL he has had a dose. My concern is this- he spends 8 hours a day with these people I feel like the likely hood of him having one at school is high. I work VERY close to his school so I could make it in an emergency. But what if I am not at work?
2) They were REFUSING to allow him to participate in the normal PE, while the other kids were running laps he was told to walk. While the other kids were playing games he was told to sit. This was AFTER getting a letter from his Neuro dr releasing him to do as he pleases in PE.
3) He has been diagnosed for 4 weeks. 7 days of those four weeks he has been sent home for possible "signs" of a seizure. Oh and one of those weeks was spring break so technically he has only attended school 3 weeks. They are so afraid of him having a seizure on their watch.
I contacted the local Epilpesy foundation and they are going to see what they can do to help with the Diastat......But IM SO FRUSTRATED!!!!!!!!
Any Suggestions???