it just took forever to get to this point, I had one doc years ago who told me my EEG was abnormal, and that I had mild myoclonus, I had to switch doctors and the second doctor said the first doctor was wrong, eventually I ended up having a conscious T/C in bed alone but the doc at the time said there was no way I could be conscious during a seizure, or have a seizure because at the time I was on Primidone and Topamax for my Essential Tremors, he said he didnt know what I had experienced and suggested a shrink, I had a few EEGs switched doctors, and everything kept coming back negative, but finally I got proof, working on getting a MRI next. My current Neurologist seems ok, he has experience with both movement disorders and epilepsy, so I think I'll stick to him, I still kick myself in the ass for switching from the first neurologist he was great, but his office sucked(I waited 2 hours once to be seen only to be told the doctor had left for the day an hour earlier), and I switched because I was looking for a movement disorder specialist for my essential tremors, the second doc was an ass he put me on topamax which kinda helped the shakes, but also made me lose a lot of weight and had cognitive and sexual side effects, I had to argue with him to get off of it. As long as the primidone seems to do the job I'll stick with the current doc.
Ive been lurking here off and on for a few years I comment once in a while, this site has really helped me know what Im up against, and Im so grateful for the support of the folks here who told me I wasnt just crazy, I was so scared to be labeled a faker or a hypochondriac.