Finally home!

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

valeriedl

VIP
Moderator
Supporter
Messages
5,765
Reaction score
779
Points
268
A little over a week ago I started getting cold sweats in the evening while I was watching tv with my dad. When I started feeling a little better I went to bed. I woke up the next morning with severe double vision. I took my meds and nearly threw them up, I had dry heaves for about an hour. My parents decided to take me to the ER because of everything that was going on. I didn't have any energy and they couldn't get me out of bed so they had to call for an ambulance. I went to the local hospital and stayed over night, I had some blood work done, they couldn't find anything wrong (of course) so they sent me home the next morning. I still had double vision and could only/barely see with one eye opened. That night both my parents had to help me in and out of bed to go to the bathroom, holding me up, I ran into the walls.

I wasn't any better the next morning, started having dry heaves again, double vision and no energy. My mom called my neuro in the city, almost an hour away, and they said to go to the ER in that hospital. My parents practically carried me to the car and drove me there with a bucket in front of me that I kept dry heaving in. I was admitted there.

I had blood work done, CAT scan, a 24 hour EEG and I don't know what else done. It took at least 3 days before they found a med that would stop the double vision for a little bit but if I kept both my eyes open for too long it would come back again. About a day after that the double vision did stop but my brain felt like it was bouncing around in my head, I tried explaining that feeling that to the drs but they didn't seem to understand.

They couldn't find out what was going on, said they had to wait for some results of the blood work but I was finally sent home with no answer. I'm a bit unsteady from time to times, have some med for being light headed (luckily only needed to take once) and I'm having home health come in and help me be steady on my feet again. Just glad to be home!
 
That sounds awful. I'm glad to hear that the double vision has stopped. Hopefully it was just a transient thing.
 
I hope you get some answers soon; that sounds very scary, like a migraine from hell...
 
Hi Valeriedl,

It sounds like we've had a little in common. I had double vision when my meds became toxic but the worst part
was when I started to get an upset stomach and I was vomiting for days along with dry heaving. Just like you I went
to the Dr. and he sent me to a gastro specialist and they found out the one drug I was taking mysoline (primindone)
ate up the lining of my intestines. It took me about 2 months to get over this and I was told to eat a low fat and low
acid diet along with activia yogurt and that really helped me a lot. I'm glad to hear you are home and feeling better.
I wish you only the best of luck and May God Bless You!

Sue
 
Back
Top Bottom