First visit to new neuro

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Well, today marked my first visit to my new neurologist here in New York, and tomorrow I will have my first EEG (sleep deprived, woohoo) since my diagnosis of epilepsy. That shouldn't be hard as my sleep has been all sorts of screwed up these past couple of weeks. I can't sleep for the life of me most nights (got a prescription for some new medication for that too that is supposed to compliment the Celexa I'm taking, but we'll see if I take it or not - I'm kinda sick of medication, but sleep seems to be my number one predictor of seizures and bad moods, so who knows).

He suspects that I have left temporal lobe epilepsy from what I've told him (guess we'll probably know better after tomorrow's EEG?). He said sometimes EEGs that show frontal lobe abnormalities can be from the temporal lobe, since they're close to each other. Anyway, he said he's probably going to put me on Lamictal with the Keppra to stop the partial seizures that I am still having. He questioned the decision-making of the very first neurologist I saw who just took me off of medication completely because of the normal EEG (after my first seizures).

Now the bad news: despite my Oregon driver's license, and the Oregon state law of three months no driving post-seizure, I'm still not supposed to drive for three more months because I live in New York and NEW YORK state law is six months... even though MY DMV (Oregon state) is three months. It doesn't make sense to me because I'm not a New York state resident, and for example if I drove from Oregon to a state with a six month law, I'm pretty sure I wouldn't get into trouble if I got caught, but that is what the neurologist tells me... And, because of the military, even if my STATE DMV says I can drive, I have to get my neurologist's approval, and he said he can't approve it because of New York law. *sigh*... I almost broke down in tears. I am two weeks away from my three month mark, and I look out the window longingly at my nice, shiny, new (well, as of last year) Subaru that is dying to head out to some good trails... Especially because I really am out in the middle of nowhere with no public transportation. To get anywhere I either a) have to take a taxi b) get a ride, or c) ride my bike - which will be okay for local stuff until winter hits here. I'm still getting into good bicycling shape and getting comfortable riding with traffic and whatnot... I'm up to 20 miles now - woohoo.

Anyway, my moods WERE doing better, and I was getting hopeful that I'd get to live my life normally again, but now I'm just getting frustrated again. And my lack of sleep lately is NOT helping. And if I WASN'T in the military, I'd probably just move somewhere else where I'm near PEOPLE who I KNOW, or public transportation, or SOMETHING, but I have to live HERE. ON POST so I can be next to my "job" (that I'm not working), away from the rest of civilization. At least I'm getting free health care, still have a job/am getting paid, and a place to live... Maybe I should stop complaining. But damn. Okay, that wasn't supposed to turn into a rant... Rant complete. :)
 
We ALL deserve a rant..... :-)

Glad they running more tests....hope tomorrow is insightful.

Lamictal with Keppra? Have you been on this combination before......? What are you taking now?

Our neck of the woods, its 1 full year driving ban post seizure......and if I think of My Son having seizure behind wheel, one I can understand...sorry..
 
Thanks for the encouragement :)

The only medication I've been on is Keppra. I was only diagnosed in April so I'm still pretty new to it all! The neuro's reasoning is Keppra alone doesn't seem to be strong enough and Lamictal is one of the safer ones if I choose to get pregnant.

As for driving I know three months is short. Though even before I was medicated I only had three (two were on the first day I had any seizures) seizures in the past two and a half years and I've always had warning .... I just wish I was somewhere that had some type of public transportation. Then it would be a little easier to deal with as I'm pretty independent and have a hard time asking non family members for things (and they're all the way in Oregon! )

Sent from my Vortex using Tapatalk 2
 
cant help but be surprised (always) at the cocktail of meds :-(....but I am no expert in that area...

at least its summer for your bike rides :)

be thinking of you tomorrow..
 
Sorry about the No-Driving thing. But it sounds like your new neuro is probably on the ball. Make sure you ask him what to expect with the Lamictal in terms of dosing schedule, target dose, side effects, etc.

Hope the EEG goes well tomorrow!
 
Well, I will know more at my follow up in a couple of weeks unless something really unusual came up on my results (we all ready know I have epilepsy, so that won't be unusual - it's just a matter of where it's coming from)

I also have an MRI scheduled for next week to look again at any possible issues there, since they didn't do one after my last seizure. AND, not with the same clinic, but I have neuropsych next week as well. Maybe they can help me with my complete location disorientation that I get... (Not quite jamais vu, but I never seem to remember what direction I should be going in. This has been going on for as long as I can remember). And my crappy memory - that seems to be common in the epilepsy community :)
 
Also, despite my sleep deprivation the night before, I could NOT fall asleep during my EEG! Which would have been good, I think, because I'm certain some strange things DO happen sometimes while I'm sleeping.
 
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