for my fellow t/c'ers

[msuder0583]

for those who have tonic-clonics.....have you ever entered the tonic phase but not gone into the clonic phase? it never happened to me before, but when i was lowering one med and upping another, during that wheeing period i had about 3 of those. its a very interesting experience. you get like a HUGE head rush, then become completely frozen and cant move at all, yet you can see, hear and talk. only lasts about 15 secs or so and then you're done.

 

[valeriedl]

I think I sort or know what you are talking about. I usually have those types once or twice a year, the rest of the time they are a varity of all the others.

The last tc I had I did black out for about 5 minutes probably longer. When I "woke up" (if that's how you want to describe it) I was laying on the ground, my dad put me there. My family was talking to me, asking me questions, I knew what they were saying but I just couldn't get my lips to move to answer them. I was laying on my arms and I was trying like everything to get them out from under me but my body was just froze there.

My dad put me in a chair after he saw that I was "awake", I was sitting in it but I couldn't get my arms off the arm rests and still couldn't get my lips to move. I was even tying to move my head to nod yes or no but I just couldn't do it. I know that lasted at least another 10 minutes because my mom called 911.

When the ambulance got to the house I was finally able to start moving things. I wasn't completely out of the seizure yet because I was confused about things and wasn't doing things right.

This was the first time that I had a seizure like that where I knew what was going on during it. Usually I just black out, and when I wake up someone told me that I had a seizure because I had no knolodge that I'd had it. It was pretty scarry for me.

 

[Chris515]

for those who have tonic-clonics.....have you ever entered the tonic phase but not gone into the clonic phase? it never happened to me before, but when i was lowering one med and upping another, during that wheeing period i had about 3 of those. its a very interesting experience. you get like a HUGE head rush, then become completely frozen and cant move at all, yet you can see, hear and talk. only lasts about 15 secs or so and then you're done.

I've had a similar experience! It's happened a few times. I get the head rush, and I can't move. I can see, but I can't talk and my hearing slowly fades away. It lasted about the same amount of time and it suddenly went away. I couldn't talk properly for an hour or so afterwards, and couldn't comprehend speech or writing. But I was able to walk home and was aware of myself and my surroundings.

It was like a tc was about to start and suddenly decided not to. I was fine with that...

 

[Rae1889]

I have those on occasion. I had one while standing and it was literally like i fell flat on my back and it would have knocked the wind outta had i not already been tense.

 

[Jfpinell]

for those who have tonic-clonics.....have you ever entered the tonic phase but not gone into the clonic phase? it never happened to me before, but when i was lowering one med and upping another, during that wheeing period i had about 3 of those. its a very interesting experience. you get like a HUGE head rush, then become completely frozen and cant move at all, yet you can see, hear and talk. only lasts about 15 secs or so and then you're done.

Uhhhhhh......I almost fell off my chair reading that! I think I may have FINALLY unlocked the thing I've been trying like heck to figure out for years now. About 10 years ago (I know I've mentioned this before) I was driving along when suddenly I couldn't move. I could see and hear everything just as normally as all other times, but it was like I was froze stiff as a board. I don't know if I wanna' go into all the interesting details again, but this may finally solve at least 1 part of this thing that's been bugging me to no end for about 10 years.

 

[msuder0583]

why did you almost fall off your chair?

 

[Jfpinell]

Figure of speech. I couldn't believe what I actually just read. Like "WOW!" I don't believe it! Total surprise.......

 

[msuder0583]

well i know it was a figure of speech but why did it surprise you though?

 

[Jfpinell]

About 10 years ago, I was driving home when, to put it all short, I started to have this same experience and didn't know what on earth it was. Finally I see someone else has had this, and I can finally unlock part of this.

 

[msuder0583]

oh. now i understand. yeah the first time it happened to me it was very strange. it was almost as if i was frozen in time, and everything else continued on around me. i was like one of those mannequins at department stores. but unlike some of the other stories on here that i've read, i could still communicate with others around me, and prior to the stiffening i still gave out the typical yell. thats why i figured i entered the tonic phase but didn't go into the clonic phase (thank God). because the clonic phase to me, is painful and with it being so unpredictable....

 

[Jfpinell]

Seriously I thought I was going crazy. ....I was driving along and started to feel like I was going to have one. Pulled over until it passed (complex) and after I felt better, went on my way (yes, I know I shouldn't have everyone's going to say), But given it was Sunday morning, no one around, nothing within decent distance open I could walk to, and my nearest relatives at the time an hour away, (I was waaaaay out in farm country) as I've done before many times. Suddenly I felt as though I couldn't move. The vehicle slid onto the gravel and I'm like "Steering problem? What the heck??" I couldn't turn the wheel though and...well, seen a row of mailboxes coming at me. I must've gone over 1/4 mile on the gravel without going any farther and in the ditch (Huh??). Then I recall not being able to turn and wound up going over a curb. After that, everything is total amnesia, until, must've been no more than 10 or 15 seconds, noticed I was going the other way on the same road. Went about the same 1/4 mile, then seen the vehicle "float" suddenly across the lanes and...well, let's just say I found out that even a 4x4 isn't able to move a tree out of the way.
The thing that has driven me crazy for the last 10 years wondering if there was something wrong with my mind is that for the life of me I couldn't figure out what happened and why there's that 10 second or so period I can't to this day account for. I've always insisted I didn't have another seizure because with every complex I've ever had in 29 years before, the same exact things happened, which didn't this time. -I didn't go into a generalized because I could talk to the first witness that ran up to me asking "ARE YOU ALRIGHT??!!". I could also walk with her to the shoulder of the road just fine. All other times my walk for awhile afterwards would seem like I just finished off a bottle of Jim Beam 100 proof.
For that unaccountable period, I couldn't see or hear anything, but yet the police report said in part "drove through the backyards of houses and between 2 houses to get back on (the road)". (By the way, there's really not much in that area except 2 houses that are waaaay off the main road next to the lake. The rest is all open land. So what he meant, I don't know.)
Correct me if I'm wrong if anyone knows, but simple logic would say that if you're out cold, there's NO WAY you can steer like that and not hit anything -especially since I was froze all the while going both ways on the road for the same roughly quarter mile. But yet during the few seconds I don't recall at all I was able to steer around objects without hitting anything?? Uhhhh....is there something wrong with that picture? Or may it have been that I was just SO scared to say the least, my mind just won't LET me recall those few seconds?

 

[msuder0583]

well. that was quite a story...very compelling. felt like i was reading a novel. anyways, im really not sure what happened there. during the event where you said your car went over the curb, back in the other lane, hit the tree, and you couldn't move sounds exactly like i was talking about. however, what i dont understand is that there are events are occured where your car would have flown like 200 yards (im guessing, according to you) to land in these peoples' backyards according to the cop's police report - yet you didn't know, because you had a momentary blackout i assume. that - i never have experienced and it seems you don't quite understand what happened there either

 

[Jfpinell]

It just doesn't make logical sense that a person having a seizure could steer around anything. Logical thinking says I should've gone in the lake, if anywhere.

 

[msuder0583]

yeah i know what you mean. on what side of the brain do your seizures begin?

 

[Jfpinell]

Good question. After 38 years, I was finally told by a neropsychologist, ironically not a neurologist, that because my memory and processing are slow they're starting up front.

 

[msuder0583]

well i believe the frontal lobe controls motor skills so EVEN if your seizures at times were generalized even the possibility of you controlling anything while having a seizure seems slim/none. i'm at a lossonder:

 

[Jfpinell]

From what I've been told the front area is memory and processing. Maybe more...I'm not sure. The only other thing I know is that balance is in the back towards the bottom. I've been told on here that others have had complex partials where they've done things like walk down the street and turn at the corner that they originally had their mind set on doing but then weren't aware of it. (Kinda' like a sleepwalker. I've heard and read stories about cases where people have taken mile long walks in their sleep and then not recalled anything the next day.) I wonder if this ain't something along that line.