katie's mom
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I'm new here and a "refugee" from the epilepsy foundation Web site. I was part of a large forum designed specifically for parents of childhood epilepsy patients. This was a lifeline for me and so many other members. Unfortunately, the foundation changed its format, and as a result a large number of parents have been blocked from the Web site due to privacy filters.
I know that you would be able to capture a sizable following by hosting a forum for parents. Our needs are a little different and we really enjoy the support that we receive from fellow mom's (and dad's in some cases).
Just something I thought you might consider!
Thanks for your time!!
Kristi
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Mom to 4yo Katie (approaching a "Doose Syndrome" dx); 1st sz Sept '08; daily sz's since Dec '08
I know that you would be able to capture a sizable following by hosting a forum for parents. Our needs are a little different and we really enjoy the support that we receive from fellow mom's (and dad's in some cases).
Just something I thought you might consider!
Thanks for your time!!
Kristi
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Mom to 4yo Katie (approaching a "Doose Syndrome" dx); 1st sz Sept '08; daily sz's since Dec '08