found out about the joint pain and rash

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gr33nr0se

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possibly drug-induced lupus. they took me off depakote for six weeks to see if it settles. my mom waited til the day after my birthday to tell me. i love her
 
Wow. Lupus. You've been round the bend and back with your meds. What are they giving you instead of the depakote? Or did they just yank it cold turkey without a replacement?

How are you feeling?
 
I'm glad you're not suffering from the rash and the joint pain. What's the plan for when the 6 weeks are up?
 
they put me on .5 ativan which puts me at risk for a big seizure. the pain changes everyday. today, it's almost unbearable. we don't know if it's drug induced yet. here's hoping. when 6 weeks are up, they are testing my ANA again to see if it has dropped. normal levels are 80. mine is 650. if it has dropped, then it is drug induced, if not, then i have to live with lupus.

this year has been crazy.
 
I think it's pretty likely that the Depakote is to blame. It's on the list of drugs that cause drug-induced lupus along with Dilantin and Tegretol.

So hang in there, you should start to feel better soon. Are they giving you anything for the pain?
 
My daughter had that pain when they tried Lamictal with her. Then Trileptal seemed to bring out the rash... it wasn't a pretty time.

She remains med free and seizure free, when being careful with her nutritional choices.
 
I certainly

hope that you don't have any t/c's while off the Depakote. Take it easy, and stay as relaxed as you can, OK?
 
i went to a rheumatologist yesterday. he took 9 tubes of blood. they are all specialty tests and we will know the results in two weeks. he said, that if i do have non-drug induced lupus, then it may be responsible for my epilepsy. whether or not it is, there is no way to cure it so i will have lupus and epilepsy
 
Still think the evidence points strongly for drug-induced. And I'm certainly rooting that way.

Remember to drink a lot of water, that will help with replacing the blood those vampires drained...
 
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