sdhcbecker
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Hi there- our son (9 yrs old) was diagnosed with partial complex seizures in late July. He would have spells of staring and non responsive. He would also sometimes have rolling of his eyes, along with eye fluttering and a lot of rubbing of his eyes. Sometimes he has confused speech and just odd behavior. He was put on Keppra starting low and ending at 625 mg twice a day. He seemed to be doing well until late October when he started having episodes again. Mainly at school. He would tell his teacher he felt hazy or lost. At times they would notice, but others they wouldn't. He'd always get extremely tired after, sleeping 2-4 hours. His dr increased his meds but things just got worse. He was at 750 mg 2xday. His dr decided to to a 24 hour EEG which they said was "normal" although it did have "slow" brainwave activity (the first EEG in Aug showed the same with no actual seizure). The dr has now decided they are unsure that this is seizure and have weaned him off his meds. I know there is something wrong!!! This is not my son, and I just don't know what to do. Even his primary Dr agrees with me, however the neurologist wants to see how he does off the meds. He complains that it is too loud sometimes. He also complains his stomach doesn't feel good during or around these episodes. I've read posts from others and really see similar things in my son. I just don't know what to do.