WorriedMom
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I guess I really need to just vent here , but im also looking for some advice from others.
I was given my sons Heath Care Action Plan ( which is basically an OH GOD CALL 911 ) for his school. I am disapointed to see that the numerous hours I've spent on the phone and in person with the nurse, and the principal, seem to have gotten me no where. Ive taken in EVERY set of notes from the doc each time we visit with an updated meds list, i even go above and beyond to print up side effects for them, Because Ryan's seizures have gotten so much worse and these new episodes have reared their ugly heads, I went back in to talk to the nurse, the principal, his teacher and his class aide, The nurse decided there needed to be a new action plan drawn up , which i agreed. It was given to me to sign.
As I was reading it I realised how much of what I had said to them was in one ear and out the other. She attached some paper about what to do when a Grand Mal occurs, which is nice that she found that , but RYAN DOESNT HAVE THAT TYPE OF SEIZURE ! He never has , so although it is something that people should be aware of , it will not help in the general well being of my son in case of an emergency, Not one :soap: thing she wrote down for his emergency plan is/ was something to help him.
So here i am frustrated because I just spent the last hour writing everything I want in his emergency plan , and crossing out everything she wrote in hers, and attaching what i wrote , with a giant red X across her form for me to sign, nicely telling her i will sign it when she corrects it. Why is it that people treat him as if E is a contagious disease ?! It makes me so mad that a little listening on their part would save a whole lot of time , and she might even learn something ! :e: I have really been considering doing a lecture for his school , to explain that Grand Mal are NOT the only type of seizure. :idea:
/end rant /
I was given my sons Heath Care Action Plan ( which is basically an OH GOD CALL 911 ) for his school. I am disapointed to see that the numerous hours I've spent on the phone and in person with the nurse, and the principal, seem to have gotten me no where. Ive taken in EVERY set of notes from the doc each time we visit with an updated meds list, i even go above and beyond to print up side effects for them, Because Ryan's seizures have gotten so much worse and these new episodes have reared their ugly heads, I went back in to talk to the nurse, the principal, his teacher and his class aide, The nurse decided there needed to be a new action plan drawn up , which i agreed. It was given to me to sign.
As I was reading it I realised how much of what I had said to them was in one ear and out the other. She attached some paper about what to do when a Grand Mal occurs, which is nice that she found that , but RYAN DOESNT HAVE THAT TYPE OF SEIZURE ! He never has , so although it is something that people should be aware of , it will not help in the general well being of my son in case of an emergency, Not one :soap: thing she wrote down for his emergency plan is/ was something to help him.
So here i am frustrated because I just spent the last hour writing everything I want in his emergency plan , and crossing out everything she wrote in hers, and attaching what i wrote , with a giant red X across her form for me to sign, nicely telling her i will sign it when she corrects it. Why is it that people treat him as if E is a contagious disease ?! It makes me so mad that a little listening on their part would save a whole lot of time , and she might even learn something ! :e: I have really been considering doing a lecture for his school , to explain that Grand Mal are NOT the only type of seizure. :idea:
/end rant /